Monthly Archives: April 2012

Health Minister talks about ME

Posted on 04/26/2012 by wames

On 25th April a number of AMs asked questions about services for ME, highlighting the difficulties patients have in finding healthcare from knowledgeable professionals in Wales. The Health Minister Lesley Griffiths replied: There is a lot of misunderstanding and more … Continue reading →

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Change to ESA 30th April

Posted on 04/18/2012 by wames

About 100,000 ill and disabled people will lose their Employment and Support Allowance on 30 April 2012. From that date a new time limit will apply to the Employment and Support Allowance which is paid on the basis of National … Continue reading →

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Welsh Assembly Question on ME clinic

Posted on 04/17/2012 by wames

David Melding (South Wales Central) asked if there were any plans to provide a designated clinic in Wales to treat Myalgic Encephalomyelitis and to help develop community services. (WAQ60029) Health Minister Lesley Griffiths answered: “I am not aware of any … Continue reading →

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CFS: The challenges in primary care: a webinar

Posted on 04/17/2012 by wames

A new continuing medical education program about CFS has been launched on Medscape as a collaboration between Medscape Education and the CDC, the Centers for Disease Control in the US. The video program features expert physicians Dr Anthony Komaroff, Dr … Continue reading →

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Assessment of energy metabolism by Serum Fluorescence Emission

Posted on 04/17/2012 by wames

Researchers from Witchita Kansas examined the metabolic component  of CFS, by determined serum NAD(P)H levels in 44 CFS patients and 30 healthy control  subjects by measuring serum fluorescence emission at 450 nm. It was directly correlated with serum coenzyme Q10 … Continue reading →

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Lynn’s London Marathon fundraising effort

Posted on 04/17/2012 by wames

Message from Rob & Menna Messenger: Our son Cerith and daughter Eleri have been severely ill with ME for 8 and 6 Years respectively. Eleri (now 21) has been unable to stand / walk since the age of 15, and … Continue reading →

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MRC funded research projects

Posted on 04/16/2012 by wames

Summaries of the current research projects funded by the MRC aimed at ‘Understanding the Mechanisms of CFS/ME’ have been added to the the section ‘MRC-funded research projects’ of the Medical Research Council’s CFS/ME page.  

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Presentation about life with ME

Posted on 04/15/2012 by wames

A presentation about life with ME which draws on the personal experience of Richmond and Kingston ME Group member Heather is now available for other people to use. Heather is happy for it to be downloaded as an electronic-presentation or … Continue reading →

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Benefits medical assessors have to sign Official Secrets Act

Posted on 04/14/2012 by wames

The Guardian reports that Atos Healthcare, the private healthcare company that performs controversial sickness benefit assessments has confirmed that it makes all its medical staff sign the Official Secrets Act. Two doctors who work for Atos raised their concerns with … Continue reading →

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Cognition & CFS Webinar 11/4/12

Posted on 04/10/2012 by wames

Impaired cognition in CFS is one of the most disabling and frustrating symptoms patients experience. Deficits in short-term memory, information processing and processing speed have been documented by several groups. How closely does the medical literature reflect patients’ experiences and … Continue reading →

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