Monthly Archives: January 2013

CFS/ME NICE guidelines review postponed

Posted on 01/30/2013 by wames

At the beginning of January, The ME Association wrote to NICE (National Institute for Clinical Excellence) to ask for clarification on what was happening regarding the expected 2013 review of the NICE guideline on ME/CFS. They replied saying the review … Continue reading →

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Cardiff Zumba fundraising event 14 Feb

Posted on 01/30/2013 by wames

ME Support In Glamorgan (mesig) are holding a fundraiser/awareness event on Valentine’s Day. This is to raise £3000 for a person with ME to go to Burrswood hospital in Kent. The lady is bedbound. She has been allocated a place … Continue reading →

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Carers & social care reform – Sylvia Penny interview

Posted on 01/29/2013 by wames

WAMES’ volunteer Sylvia Penny who cares for her adult daughter with ME, her adult son with asperger’s and her 90 year old mother, was one of the people interviewed on BBC Wales about the proposed changes to social care in … Continue reading →

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I Matter, We Matter Campaign for social care

Posted on 01/29/2013 by wames

I matter, we matter campaign You can get involved if you: live in Wales are receiving social care support now or expect to in the future are supporting others either as a paid worker or because of your relationships with … Continue reading →

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Panorama: The great disability scam

Posted on 01/29/2013 by wames

Only half of all people with a disability are in work. BBC’s Panorama investigates if one of the government’s most ambitious welfare reforms, costing billions of pounds, can solve the problem of disability unemployment. Reporter Sam Poling reveals the private … Continue reading →

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Influence health and social care training in Swansea!

Posted on 01/22/2013 by wames

Would you like to influence the next generation of health and social care professionals training in Swansea? The College of Human and Health Sciences invites service users and carers to be involved in their training programmes so that students hear … Continue reading →

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FINE trial treatments cost effectiveness assessment

Posted on 01/22/2013 by wames

Provisional results of the cost effectiveness assessment of the treatments used in the FINE trial (2010) have been published. The original trial found that: For patients with CFS/ME in primary care, pragmatic rehabilitation delivered by trained nurse therapists improves fatigue … Continue reading →

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Sleep disruption in CFS

Posted on 01/14/2013 by wames

Dr Michael Breus explores the research into the effects of CFS on sleep. Excerpt from his article: Disrupted sleep is a hallmark of chronic fatigue syndrome. Chronic fatigue is associated with a range of sleep problems, including: Excessive daytime sleepiness … Continue reading →

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WAMES & MWWMEG pool resources

Posted on 01/06/2013 by wames

On 1st January 2013 WAMES and the Mid & West Wales ME Group (MWWMEG) merged with WAMES. We already had a good working relationship with MWWMEG but we are excited about this opportunity to pool resources, learn from MWWMEG and … Continue reading →

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