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Monthly Archives: August 2013
ME services event in West Wales 12 Sep – patients & carers invited
Hywel Dda LHB (Local Health Board) is holding an event to discuss the development of ME services, from 1 – 4.30pm on the afternoon of Sep 12th at the Police HQ near Carmarthen. Professionals, patients and carers from Ceredigion, Carmarthenshire … Continue reading
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Tagged Carmarthenshire, Ceredigion, Hwyel Dda LHB, local herath board, Pembrokeshire
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ME experience of Scottish neurological health services is poor
The Neurological Alliance of Scotland undertook a survey of people affected by neurological conditions in 2011 in order to capture information on people’s most recent encounter of their neurological health service. The final report sets out the findings of the … Continue reading
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Tagged Neurological Alliance of Scotland
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Paralysis in ME
Study abstract Paralysis is a symptom that is rarely highlighted in the literature for ME, yet is found amongst the most severely ill ME population and even some of those not so severely affected. My wife has experienced it for … Continue reading
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Tagged Greg Crowhurst, paralysis, severe ME, Stonebird
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Self-management can improve fatigue
Research abstract Objective: To assess the efficacy of brief fatigue self-management (FSM) for medically unexplained chronic fatigue (UCF) and chronic fatigue syndrome (CFS) in primary care. Methods: A randomized controlled design was used wherein 111 patients with UCF or CFS … Continue reading
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Tagged fatigue, Fred Freidberg, self management
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Eye movement dysfunction in ME/CFS
Research abstract Background: People who suffer from myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) often report that their eye movements are sluggish and that they have difficulties tracking moving objects. However, descriptions of these visual problems are based solely on patients’ self-reports of … Continue reading
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Tagged Claire V Hutchinson, eye movement dysfunction, Stephen P Badham, visual problems
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Human herpesvirus-6 infection can be inherited
HHV-6 has been found in people with ME. Abstract Human herpesvirus-6 (HHV-6)A and 6B are ubiquitous betaherpesviruses viruses with lymphotropic and neurotropic potential. As reported earlier, these viruses establish latency by integration into the telomeres of host chromosomes. Chromosomally integrated … Continue reading
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Tagged CIHHV-6, HHV-6, human herpes virus-6, IHS
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Scope Trendsetters for young disabled people
Trendsetters are a bunch of young disabled people who are supported by Scope to come together to talk about things that matter to them. It might be anything – school, latest technology, friends, people’s attitudes, places to go… no topic’s … Continue reading
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Tagged SCOPE, Trendsetters, young people
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Fun charity event in Cardiff 20 Sep 2014
Sam Taylor is organising an event next year for some fun and to raise money and awareness for research into Myalgic Encephalomyelitis and Invest in ME. They’ll be starting at the Norwegian Church, Cardiff Bay, heading on up past the Senedd, along … Continue reading
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