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Monthly Archives: August 2014
Can you help improve hospital care in SW Wales?
Following the publication of the Andrews Report in May 2014, ABMU Health Board invites patients and carers to help them improve hospital services in the area: 1. Patient, Family and Carer Survey – closes 5th September 2014 You can complete … Continue reading
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Tagged ABMU Health Board, ABMU survey, Andrews Report, In your shoes workshops
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The importance of understanding how our genes change
Extract from article by Cort Johnson: Epigenetics refers to the changes in sites in our DNA that are susceptible to change over time which can modify the expression of our genes. Our genetic heritage, it turns out, only sets the … Continue reading
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Tagged Cort Johnson, DNA, epigenetics, gene expression, gene modification, Patrick O McGowan
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How Corinne built a house without harmful chemicals
Flame retardants, formaldehyde and volatile organic compounds shouldn’t be in any of our houses, but for those with Multiple Chemical Sensitivities (MCS), they are a disaster. The tiny house concept has been a godsend for not a few people suffering … Continue reading
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Tagged mcs, Multiple Chemical Sensitivities
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DNA methylation modifications in CFS
Abstract Chronic Fatigue Syndrome (CFS), also known as myalgic encephalomyelitis, is a complex multifactorial disease that is characterized by the persistent presence of fatigue and other particular symptoms for a minimum of 6 months. Symptoms fail to dissipate after sufficient … Continue reading
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Tagged DNA, Dr Patrick O McGowan, Dr Suzanne Vernon, gene function, immune system, methylation, Wilfred C de Vega
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The role of sleep in CFS
Review abstract: Background: Chronic Fatigue Syndrome (CFS) affects 0.23–2.6% of the adult population. Sleep-related complaints are amongst the most frequently reported symptoms in these patients. Although a biopsychosocial model of CFS offers a plausible framework for understanding the condition, the … Continue reading
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Tagged Jason G Ellis, polysomnography, Prof Julia Newton, sleep, Vincent Deary, Zoe Gotts
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Norwegian Rituximab trial update
The Norwegian multicenter Rituximab study begins The long-awaited Norwegian phase III study of Rituximab as a treatment for ME/CFS is now getting off the ground. The study is led by the oncologists Prof Olav Mella and Dr Øystein Fluge at … Continue reading
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Tagged Dr Jo Cambridge, Dr Oystein Fluge, Norway, Prof Jonathan Edwards, Prof Olav Mella, rituximab
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Importance of diet in IBS and gastrointestinal disorders
2 research studies into Diet and IBS (follow the links for full papers): 1. Review Abstract Irritable bowel syndrome (IBS) is one of the most common gastrointestinal disorders in Western countries. Despite the high prevalence of this disorders, the therapeutic … Continue reading
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Tagged brain-gut axis, diet, FODMAPs, food, IBS, Irritable bowel syndrome
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Fatigue in OI subgroup improves with modafinil
Abstract Many patients who suffer from orthostatic intolerance (OI) may also have severe fatigue and extreme exercise intolerance. In some of these patients, fatigue may be so severe that they are unable to maintain employment. In some, even the activities … Continue reading
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Tagged fatigue, modafinil, OI, orthostatic intolerance
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MRI finds heart dysfunction in CFS
Abstract Purpose: In chronic fatigue syndrome (CFS), only a few imaging and histopathological studies previously assessed either cardiac dimensions/function or myocardial tissue, suggesting smaller left ventricular (LV) dimensions, LV wall motion abnormalities (WMA), and occasionally viral persistence that may lead … Continue reading
