Author Archives: wames

NICE stakeholder workshop reports

NICE CG53 Stakeholder engagement meeting This week NICE held an introductory stakeholder meeting in London. There were limited places at the meeting and WAMES’ request to join the meeting by video conference was not successful. Future meetings will require a trip to London. NICE … Continue reading

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Dr Myhill’s complaint to the GMC about PACE

Dr Myhill has complained to the GMC about the PACE authors The GMC is the UK doctor’s regulatory authority – the General Medical Council. Patient support is sought from all patients who feel they have been harmed by PACE. You do not have to … Continue reading

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Working carers’ survey 2017-18: give your views

Carers Wales Campaign 2017/18: Working Carers Survey As the working population ages and our loved ones are living longer, supporting carers who work is becoming increasingly important. More and more of us will be juggling caring responsibilities at home alongside work. … Continue reading

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Elevated brain natriuretic peptide levels in CFS associate with cardiac dysfunction

Research abstract: Elevated brain natriuretic peptide levels in chronic fatigue syndrome associate with cardiac dysfunction: a case control study Cara Tomas, Andreas Finkelmeyer, Tim Hodgson, Laura MacLachlan, Guy A MacGowan, Andrew M Blamire, Julia L Newton in BMJ Openheart 4:2 … Continue reading

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Autonomic Nervous System functioning related to nocturnal sleep in patients with CFS

Research abstract: Autonomic nervous system functioning related to nocturnal sleep in patients with Chronic Fatigue Syndrome compared to tired controls, by Source: M Orjatsalo, A Alakuijala, M Partinen in J Clin Sleep Med. 2017 Dec 13. pii: jc-17-00330. [Epub ahead of print] … Continue reading

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Energy efficiency nursing: managing the effects of ME/CFS: webinar 30 Jan 2018

Webinar sponsored by Action for ME Tuesday 30 January 2018 @ 8pm Energy efficiency nursing: managing the effects of M.E./C.F.S This is a CPD Webinar for Healthcare Professionals and will be most useful to nurses working within primary care. It will … Continue reading

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Measuring school functioning in students with CFS

Review abstract: Measuring school functioning in students with Chronic Fatigue Syndrome: a systematic review, by Michelle Tollit, Jennifer Politis, Sarah Knight in J Sch Health. 2018 Jan; 88(1):74-89. [published online 17 Dec 2017] BACKGROUND: It is often surmised that school functioning … Continue reading

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Unrest film showing tonight at 2 venues in Cardiff, 11 Jan 2018

Cardiff University MEDSOC invites people to join them 6.30pm – followed by a panel including WAMES, MESiG and Dr Charles Shepherd Hadyn Ellis Building, Cardiff University, Maindy Road, Cardiff CF24 4HQ Free Chapter Arts Centre Market Road Cardiff CF5 1QE 8.20pm … Continue reading

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Courses for people with long term health conditions Cwmbran & Pontypool, 16 Jan 2018

EPP: Education Programme for Patients – courses in Torfaen   Are you living with a long-term health condition or caring for somebody who is? This course gives guidelines to help you manage your condition and  improve your quality of life. Torfaen six-week courses: … Continue reading

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Cytokine signatures in CFS patients: a Case Control Study & the effect of anakinra treatment

Research abstract: Cytokine signatures in chronic fatigue syndrome patients: a Case Control Study and the effect of anakinra treatment, by Megan E. Roerink, Hans Knoop, Luuk J. A. C. Hawinkels, Leo A. B. Joosten and Jos W. M. van der Meer in Journal of Translational Medicine 2017 15:267 Background: Cytokine disturbances have been suggested to be associated with the Chronic … Continue reading

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