Author Archives: wames

In solidarity with International Long Covid Awareness Day

The Inextricable Link Between ME and Long Covid: Solidarity with International Long Covid Awareness Day   As we observe International Long COVID Awareness Day on March 15th, WAMES and the World ME Alliance stands in solidarity with the millions worldwide … Continue reading

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Research: Children & young people with severe ME/CFS get poor care

Better care needed for young people with severe ME/CFS   A study of children and young people in the UK pre-pandemic found that investigation, referral and management of those with suspected severe ME/CFS do not always meet NICE recommendations. This … Continue reading

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World ME Day 2024 campaign film – take part

Be part of the World ME Day 2024 campaign film As we approach World ME Day 2024, WAMES and the World ME Alliance (WMEA) invites you to be a part of a new short film that aims to shed light … Continue reading

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DecodeME completion date extended to Aug 2025

DecodeME results now due August 2025   The DecodeME team posted an update on 7 March 2024 DecodeME was due to be completed by August of this year Extraction of the DNA from samples has taken far longer than anticipated. … Continue reading

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NICE replies to criticism of ME/CFS guideline

ME/CFS NICE guideline based on a thorough review of the evidence   Criticisms by 50+ international researchers and clinicians of the ME/CFS NICE guideline were published in July 2023 and available on open access. In February 2024 a response from … Continue reading

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Rob’s #500miles4ME awareness raising with Dr Nina Muirhead

Rob asks Dr Nina Muirhead ‘What is ME?’   Rob Messenger shared his motivations for raising funds and awareness for ME by walking 500 miles over 100 days and climbing a total of 65,000 feet in 2 previous blog posts: … Continue reading

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Review: ME/CFS research illuminates long COVID

Unravelling shared mechanisms: insights from recent ME/CFS research to illuminate long COVID pathologies   Researchers for Melbourne Australia reviewed research into both ME/CFS and Long COVID. “Research into both disorders is mutually beneficial as Long COVID can provide a unique … Continue reading

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Rob’s #500miles4ME awareness raising reflections

#500miles4ME: taking awareness raising to a different level!   Rob summed up his motivation and fundraising activities for his #500miles4ME fundraising walk in a previous blog. He now reflects on what made him take the decision to do more to … Continue reading

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Research: Brain, immune & metabolic abnormalities linked in ME/CFS

Brain abnormality, not muscle fatigue, found in ME/CFS   An in-depth study of 17 people with virally triggered ME/CFS has uncovered an imbalance in brain activity triggered by abnormalities in the immune system. They also found distinct differences between men … Continue reading

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Become a a #GlobalVoiceForME

Together, we are battling a global health crisis With your support, we will be a #GlobalVoiceForME   This year marks the 55th anniversary since the World Health Organization (WHO) officially acknowledged ME, highlighting the urgency of addressing this global health … Continue reading

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