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Rob’s #500miles4ME awareness raising reflections
#500miles4ME: taking awareness raising to a different level! Rob summed up his motivation and fundraising activities for his #500miles4ME fundraising walk in a previous blog. He now reflects on what made him take the decision to do more to … Continue reading
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Research: Brain, immune & metabolic abnormalities linked in ME/CFS
Brain abnormality, not muscle fatigue, found in ME/CFS An in-depth study of 17 people with virally triggered ME/CFS has uncovered an imbalance in brain activity triggered by abnormalities in the immune system. They also found distinct differences between men … Continue reading
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Become a a #GlobalVoiceForME
Together, we are battling a global health crisis With your support, we will be a #GlobalVoiceForME This year marks the 55th anniversary since the World Health Organization (WHO) officially acknowledged ME, highlighting the urgency of addressing this global health … Continue reading
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Rob’s #500miles4ME fundraising success – reflections
£6004 raised for ME charities! Rob Messenger completed his 500 mile fundraising walk for charity on 5 November 2023, and by mid January 2024 he had raised a grand total of £6004 (including GiftAid) for 3 charities: WAMES £1530 … Continue reading
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Biomarker research: Similar immune system dysfunction in Long COVID & ME/CFS
Potential biomarker and treatment for imune dysfunction A potential biomarker has been identified by US researchers that indicates immune system dysfunction among people living with long COVID and ME/CFS. This involves dysfunctional CD8 T-cells. Immune deficiency and health was … Continue reading
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Ear seeds as treatment for ME/CFS – what people say
Dragon’s Den accused of being a scandal and a disgrace A Dragon’s Den programme on BBC TV on 17 January 2023 featured a business selling acupuncture ear seeds that Giselle Boxer said helped her on her journey of recovery … Continue reading
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GET should not be recommended for patients with PEM
Graded exercise therapy should not be recommended for patients with post-exertional malaise Major researchers from the US and Europe – including Todd Davenport, Carmen Scheibenbogen and David Putrino – have replied to Fedorowski et al’s Review, which supports the … Continue reading
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Research shows that ME/CFS is a biological illness
Why do some people still think ME/CFS is psychological in nature? A recent article by a team of researchers in Germany and the USA – including Manuel Thoma, Leonard Jason and Carmen Scheibenbogen – provides a clear summary of … Continue reading
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Carmarthenshire ME Support Group 3 Feb 2024
Carmarthenshire ME Support Group invites people to join them for a face-to-face meeting on Saturday 3 February at 2 pm in the Coleshill Social Centre, Coleshill Terrace, Llanelli SA15 3BT More info: John James 01267 233793 [pm only] Future meetings: Meetings will be held … Continue reading
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ME in Wales update January 2024
ME/CFS service development Health services for ME in Wales continue to be developed more slowly than everyone would like. A major reason for the hold-up is the length of time it takes to advertise and recruit new staff. WAMES continues … Continue reading
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