Tag Archives: Action for ME

AfME apologises for its role in the PACE trial & clarifies its change of position

Action for M.E. statement on: The PACE trial and behavioural treatments for M.E. On 29th August 2018 Action for ME published a statement explaining the charity’s role in the PACE trial and apologising for their role in contributing to the … Continue reading

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PACE Trial reanalysis in the news – Findings of £5m ME chronic fatigue study ‘worthless’

Times article, by Tom Whipple, Science Editor, 22 March 2018: Findings of £5m ME chronic fatigue study ‘worthless’ [register for free to read 2 articles a week] Scientists have questioned the robustness of a study that recommended exercise and cognitive behavioural therapy … Continue reading

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Scottish Government & AFME to fund ME research

BT news, 22 Feb 2018: A new PhD studentship will seek to improve understanding of the debilitating condition Myalgic Encephalomyelitis. Funding of £90,000 has been announced for research into the causes, diagnosis and treatment of a little-understood illness that blights the lives … Continue reading

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Energy efficiency nursing: managing the effects of ME/CFS: webinar 30 Jan 2018

Webinar sponsored by Action for ME Tuesday 30 January 2018 @ 8pm Energy efficiency nursing: managing the effects of M.E./C.F.S This is a CPD Webinar for Healthcare Professionals and will be most useful to nurses working within primary care. It will … Continue reading

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AfME Webinar for health professionals 30 Nov 2017 – Meeting the needs of people with ME-CFS

Action for ME blog post, 9 Nov 29017: New webinar for healthcare professionals coming soon A new webinar aimed at educating healthcare professionals about M.E. will be launched later this month. ‘Meeting the needs of people with M.E.-C.F.S – essential … Continue reading

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AfME invites PhD proposals for biomedical research pilot projects

Action for ME blog post, 10 Oct 2017: Call for biomedical PhD research proposals now open Action for M.E. is inviting PhD proposals for high-quality biomedical research pilot projects that will address the biology of Myalgic Encephalomyelitis (M.E.)/Chronic Fatigue Syndrome (CFS). … Continue reading

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ME costs UK economy over £3 billion

Action for M.E. blog post, 28 Sep 2017: ME costs UK economy over £3 billion M.E. cost the UK economy at least £3.3 billion in 2014/15, according to a research report published today. The figures account for healthcare costs, disability-related … Continue reading

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CMRC Conference 2017 Day 2 – lectures available on YouTube

UK CFS/ME Research Collaborative Conference 2017 Action for ME has posted videos on their YouTube site of the speakers on day two of the UK CMRC conference, 14 September 2017. Prof Jose Montoya – Duration: 50 minutes. Prof Jose Montoya … Continue reading

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CMRC Conference 2017 Day 1 – lectures available on YouTube

UK CFS/ME Research Collaborative Conference 2017 Action for ME has posted videos on their YouTube site of the speakers on day of the UK CMRC conference, 13 September 2017.   Stephen Holgate Avindra Nath Matt Wall Alan Silman Gina Wall … Continue reading

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ME charity responses to NICE consultation

Here are links to charities’ responses to the 4 questions on NICE’s proposal not to review the Guidelines for CFS/ME   25% ME Group Action for ME Forward ME Hope 4 ME & Fibro Northern Ireland Invest in ME Local … Continue reading

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