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ME charity responses to NICE consultation
Here are links to charities’ responses to the 4 questions on NICE’s proposal not to review the Guidelines for CFS/ME 25% ME Group Action for ME Forward ME Hope 4 ME & Fibro Northern Ireland Invest in ME Local … Continue reading
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Tagged Action for ME, Adam Lowe, Forward ME Group, Hope 4 ME & Fibro Northern Ireland, Invest in ME, ME Action, ME Association, NICE, Sir Andrew Dillon, Stonebird, Tymes Trust
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UK government plans to help people with health conditions & disabilities into work need to improve
The UK Government green paper Work, Health and Disability: Improving Lives set out the government’s proposals on ways to halve the disability employment gap experienced by disabled people and people with long-term health conditions. The consultation closed on 17 Feb 2017. Interested … Continue reading
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Tagged Action for ME, disability employment, Disability news service, Disability Rights UK, Disability Wales, Green paper, Improving lives, South East Londond ME Support Group, Spartacus
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AfME conference videos
Action for ME’s YouTube channel contains videos of their conference held on 18 Nov 2016 Includes: New technologies for M.E. research by Dr Warwick Dunn (University of Birmingham) Our five-year strategy for change by Sonya Chowdhury, CEO of Action for … Continue reading
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Tagged Action for ME, Dr Warwick Dunn, Katie McMahon, Sonya Chowdhury
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AfME conference Fri 18 Nov 2016 – watch from home
At Action for ME’s annual conference they will be asking how to collaborate more effectively to better meet the needs of people with M.E. at a local, national and international level, presentations include: Their five-year strategy for change by Sonya Chowdhury, Chief … Continue reading
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Tagged Action for ME, AfME, collaborative practice, conference
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FITNET trial reporting is misleading
Major charities and individuals have joined WAMES in expressing concern about the nature of the FITNET trial being run by Prof Esther Crawley, the lack of objective analysis in the media coverage and the questionable results from the original Dutch trial. WAMES does … Continue reading
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Tagged Action for ME, activity management, biopsychosocial model, CBT, cognitive behavioural therapy, Dr Esther Crawley, FITNET, GET, ME Association, PACE, Utting-Wolf spouts
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Videos of UK CFS/ME Research Collaborative conference 2016
10 videos from UK CFS/ME Research Collaborative conference in September 2016, posted on You Tube by Action for ME, 11 October 2016 Part 1: Welcome by Professor Stephen Holgate Researching a Syndrome: Findings from the UBC Complex Chronic Disease Study … Continue reading
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Tagged Action for ME, Andrea Polli, Andreas Finkelmeyer, Dr David Patrick, Dr Esther Crawley, Jessica Van Oosterwijck, Nadia Howard-Tripp, Prof George Davey Smith, Prof Paul Little, Prof Stephen Holgate, Prof Tom Walley, Professor Tom Walley, Sonya Chowdhury, UK CFS/ME Research Collaborative, UK CMRC, Victoria Strassheim
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CMRC conference: watch from home 28, 29 Sep 2016
Action for M.E. blog post, 27 September 2016: 3rd CMRC conference starts tomorrow The first day of the third annual CMRC conference will be held on Wednesday 28 and Thursday 29 September 2016 at the Novotel, Newcastle Airport. Our plan … Continue reading
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Tagged Action for ME, UK CFS/ME Research Collaborative, UK CMRC
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Poor medical care & neglect are major factors in ME/CFS suicide
Shout about ME blog post, by Russell Logan, 14 May 2016: Suicide risk 5 times higher in ME/CFS: Poor medical care, neglect are major factors The risk of suicide among ME/CFS patients is a staggering five times higher than the … Continue reading
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Tagged 25% ME Group, Action for ME, AfME, Juan Jimenez-Ortiz, PARS, Prof Leonard Jason, Russell Logan, Spain, suicide
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ME not conversion disorder, says AfME
Action for M.E. criticises psychosomatic M.E. claim, January 27, 2016 Action for M.E. has criticised an article on Psych Central claiming M.E./CFS is a psychosomatic illness and the result of conversion disorder. [the article has since been removed] In their comment … Continue reading
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Tagged Action for ME, AfME, conversion disorder, Dr Speedy, Psych Central, psychosomatic
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Close to collapse – Shocking report exposes failings in ME social care
Shocking’ report exposes failings in ME social care, By Raya Al Jadir in Disability News Service, November 13, 2015 A tiny proportion of disabled people with the neurological condition ME are receiving the social care they could be entitled to, according to … Continue reading
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Tagged Action for ME, Catherine Hale, Close to collapse report, social care, Sonya Chowdhury
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