Tag Archives: activity management

Video: Fatigue, pacing & PEM – lessons for long COVID from ME/CFS

Fatigue, Pacing and PEM management: lessons from ME/CFS – with Dr Ben Marsh   Dr Asad Khan talks to Dr Ben Marsh about his experience of ME/CFS over the last 4 years, and what lessons the Long COVID community can … Continue reading

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Video: Activity & energy management – Pacing

Dialogues for a neglected illness: Activity and energy management – Pacing   The Dialogues for ME/CFS project (also known as Dialogues for a neglected illness) has produced a new video explaining pacing for health professionals. “Pacing is an individualized approach … Continue reading

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Managing fatigue in postural tachycardia syndrome (PoTS): The Newcastle approach

Managing fatigue in postural tachycardia syndrome (PoTS): The Newcastle approach, Victoria Strassheim, Jenny Welford, Rob Ballantine, Julia L Newton in Auton Neurosci. 2018 Feb 22. pii: S1566-0702(17)30328-4 [Epub ahead of print] Highlights: Fatigue is a common symptom described by those … Continue reading

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Efficacy of 4-steps physical activity self-regulation programme for chronic fatigue

Research highlights: 4-STEPS yielded sustained small to moderate sustained effects on self-reported fatigue severity, impact, and health-related quality of life. There were modest effects on physical activity. There were no significant effects on psychological and somatic distress. Benefits on fatigue … Continue reading

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FITNET trial reporting is misleading

Major charities and individuals have joined WAMES in expressing concern about the nature of the FITNET trial being run by Prof Esther Crawley, the lack of objective analysis in the media coverage and the questionable results from the original Dutch trial. WAMES does … Continue reading

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Crawley study to compare online CBT & activity management for children

Today, November 1st 2016, Prof Esther Crawley launched a recruitment campaign in the media for her FITNET-NHS trial. The trial website describes the aim of the study: The FITNET-NHS study is a randomised controlled trial comparing two treatments for children with Chronic … Continue reading

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MAGENTA trial – PACE for children

Dr Esther Crawley’s study of activity management and Graded Exercise Therapy in children started in September 2015 and is due to end in August 2016 Tymes Trust comments when calling for an investigation into the PACE trial data: “We are frequently … Continue reading

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