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A qualitative analysis of teachers’ experiences of CFS/ME
‘It’s a medical condition … you need to support as much as possible’: A qualitative analysis of teachers’ experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME), by Amberly Brigden, Alison Shaw, Esther Crawley in BMC Pediatrics Vol 21, #1, p 6, January 4, 2021 … Continue reading
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Tagged Alison Shaw, Amberly Brigden, children, Dr Esther Crawley, paediatrics, primary school, teachers
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CFS/ME in children aged 5 to 11 years: a qualitative study
Chronic fatigue syndrome/myalgic encephalomyelitis in children aged 5 to 11 years: a qualitative study, by Amberly Brigden, Alison Shaw, Emma Anderson, Esther Crawley in Clinical Child Psychology and Psychiatry Oct 2020 [doi:10.1177/1359104520964528] Research abstract: Treatments for paediatric chronic fatigue … Continue reading
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Tagged Alison Shaw, Amberly Bridgen, children, Dr Esther Crawley, Emma Anderson, paediatric CFS
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Developing & pretesting a new patient reported outcome measure for paediatric CFS/ME
Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME): cognitive interviews with children, by Roxanne M. Parslow, Alison Shaw, Kirstie L Haywood, Esther Crawley in Journal of Patient-Reported Outcomes Vol 3, p 67 [First … Continue reading
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Tagged Alison Shaw, children, cognitive interviews, Dr Esther Crawley, Kirstie Haywood, paediatric CFS, Patient reported outcome measure, PROMS, Roxanne Morin Parslow, Three step test interview, TSTI
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Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME
Adolescent’s descriptions of fatigue, fluctuation and payback in chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): Interviews with adolescents and parents, by Roxanne M Parslow, Nina Anderson, Danielle Byrne, Alison Shaw, Kirstie L Haywood, Esther Crawley in BMJ Paediatrics Open Vol 2, #1, December 4, 2018 What this study hopes … Continue reading
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Tagged adolescents, Alison Shaw, children, Danielle Byrne, Dr Esther Crawley, Kirstie Haywood, Nina Anderson, paediatric ME, payback, relapse, Roxanne Morin Parslow, teenagers
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Important factors to consider when treating children with CFS/ME
Research abstract: Background: Paediatric Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME) is relatively common and disabling. Improving treatment requires the development of Patient Reported Outcome Measures (PROMs) that enable clinicians and researchers to collect patient-centred evidence on outcomes. Health professionals are well placed to provide … Continue reading
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Tagged adolescents, Alison Shaw, children, Dr Esther Crawley, Kirstie Haywood, paediatric ME, Patient-Reported Outcome Measures, PROMS, Roxanne M Parslow, teenagers
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