Tag Archives: children

Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME

Adolescent’s descriptions of fatigue, fluctuation and payback in chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): Interviews with  adolescents and parents, by Roxanne M Parslow, Nina Anderson, Danielle Byrne, Alison Shaw, Kirstie L Haywood, Esther Crawley in BMJ Paediatrics Open Vol 2, #1, December 4, 2018 What this study hopes … Continue reading

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Understanding ME & CFS symptoms in children – take part in research project!

Symptomatology of pediatric ME & CFS – research project The Center for Community Research at DePaul University in the USA, led by Prof Leonard Jason says: There is currently little research on children with myalgic encephalomyelitis (ME) and chronic fatigue … Continue reading

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School nurses can improve the lives of students with ME/CFS

School nurses can improve the lives of students with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome, by Kenneth J. Friedman, Beth Mattey, Faith Newton in NASN School Nurse  [First Published September 15, 2018] Article abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic illness that … Continue reading

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Videos: Prof Peter Rowe & Dr Nigel Speight, discuss paediatric ME/CFS

Paediatric ME/CFS (from Voices from shadows website)  Two world renown ME/CFS paediatricians, Prof Peter Rowe and Dr Nigel Speight, discuss paediatric ME/CFS diagnosis and management in two short videos for medical professionals, following publication of the comprehensive manual Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome … Continue reading

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Childhood sleep & adolescent CFS/ME

Research abstract: Childhood sleep and adolescent chronic fatigue syndrome (CFS/ME): evidence of associations in a UK birth cohort, by SM Collin, T Norris, P Gringras, PS Blair, K Tilling, E Crawley in Sleep Med. 2018 Jun;46:26-36. OBJECTIVE/BACKGROUND: Sleep abnormalities are characteristic of … Continue reading

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Pediatric CFS: Dr Crawley’s perspective

Article abstract: Pediatric chronic fatigue syndrome: current perspectives, by Esther Crawley in Dove Press  Vol 9, #4, pp 27—33 [Published March 29, 2018] Pediatric chronic fatigue syndrome is an important illness as it is relatively common and also very disabling with … Continue reading

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Low mood, poor quality of life & high symptom impact in adolescents attending a tertiary service for CFS/ME

Research abstract: Prevalence and correlates of low mood, poor quality of life and high symptom impact in adolescents attending a tertiary service for chronic fatigue syndrome/myalgic encephalomyelitis, by FK Neale, TY Segal, DS Hargreaves in Archives of Disease in Childhood Vol 103, Suppl … Continue reading

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Childhood sleep & adolescent CFS/ME

Research abstract: Childhood sleep and adolescent chronic fatigue syndrome (CFS/ME): Evidence of associations in a UK birth cohort, by Simon M Collin, Tom Norris, Paul Gringras, Peter S Blair, Kate Tilling, Esther Crawley in Sleep Medicine [Preprint January 31, 2018] Highlights: Children … Continue reading

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Measuring school functioning in students with CFS

Review abstract: Measuring school functioning in students with Chronic Fatigue Syndrome: a systematic review, by Michelle Tollit, Jennifer Politis, Sarah Knight in J Sch Health. 2018 Jan; 88(1):74-89. [published online 17 Dec 2017] BACKGROUND: It is often surmised that school functioning … Continue reading

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Guidelines for children with ME now available to download

Myalgic Encephalomyelitis Chronic Fatigue Syndrome Diagnosis and Management in Young People: a primer, 2017 Edition This primer was compiled and published in June 2017 by the International Writing Group for Pediatric ME/CFS. It was originally published as a review article based in Frontiers in … Continue reading

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