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Severe ME in children
Severe ME in children, by Nigel Speight in Healthcare Vol 8, #3 p 211, July 14, 2020 [This article belongs to the Special Issue ME/CFS] Guideline abstract The current problem regarding Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is the … Continue reading
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Tagged CBT, children, cognitive behavioural therapy, Dr Nigel Speight, Fabricated or Induced Illness, GET, graded exercise therapy, immunoglobulin, paediatric ME, PEM, Pervasive Refusal Syndrome, Post-exertional malaise, severe ME
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A qualitative exploration of treatment preference in paediatric randomised control trials
A qualitative exploration of treatment preference in paediatric randomised controlled trials, by Lucy Beasant PhD thesis, University of Bristol, [Bristol Medical School (PHS), Bristol Population Health Science Institute] November 28, 2019. Supervisors: Esther M Crawley, Nicola J Mills & Bridget … Continue reading
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Tagged children, Lucy Beasant, paediatric CFS, Randomised Controlled Trials, RCT, treatment preference, young people
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Save4Children – helping children with ME in psychiatric wards
Save4Children – helping children with ME in psychiatric wards The charity Save4Children has been created by the editors of the ME Global Chronicle and helps parents whose children have been forced into psychiatric wards by authorities, to try and … Continue reading
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Tagged children, Global ME Chronicle, Karina Hansen, psychiatric misdiagnosis, Save4Children
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Pediatric-onset Postural Orthostatic Tachycardia Syndrome in a single Tertiary Care Center
Pediatric-onset Postural Orthostatic Tachycardia Syndrome in a single Tertiary Care Center, by Anthony Staples, Nicolas R Thompson and Manikum Moodley in J Child Neurol. Vol 35, Issue 8, 2020 [doi: 10.1177/0883073820916260] Research abstract: AIM: We characterize the pediatric postural orthostatic … Continue reading
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Tagged adolescents, Anthony Staples, children, chronic fatigue, Manikum Moodley, migraine, Nicolas R Thompson, postural orthostatic tachycardia syndrome, POTS, teenagers
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Interventions to treat pain in paediatric CFS/ME: a systematic review
Interventions to treat pain in paediatric CFS/ME: a systematic review, by Caitlin Ascough, Hayley Kin, Teona Serafimova, Lucy Beasant, Sophie Jackson, Luke Baldock, Anthony Edward Pickering, Jonathan Brooks, Esther Crawley in BMJ Paediatrics Open Vol 4, #1, March 2020 … Continue reading
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Tagged Anthony Edward Pickering, Caitlin Ascough, children, chronic pain, Dr Esther Crawley, Hayley Kin, Jonathan Brooks, Lucy Beasant, Luke Baldock, paediatric CFS, Sophie Jackson, Teona Serafimova
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The prevalence of pediatric ME/CFS in a community‑based sample
The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a community‑based sample, by Leonard A Jason, Ben Z Katz, Madison Sunnquist, Chelsea Torres, Joseph Cotler & Shaun Bhatia in Child & Youth Care Forum, 23 January 2020 [doi.org/10.1007/s10566-019-09543-3] Research … Continue reading
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Tagged Ben Z Katz, Chelsea Torres, Chicago, children, diagnosis, Joseph Cotler, Madison L Sunnquist, paediatric ME, prevalence, Prof Leonard Jason, Shaun Bhatia, young people
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Paediatric patients with ME/CFS value understanding & help to move on with their lives
Paediatric patients with myalgic encephalomyelitis/chronic fatigue syndrome value understanding and help to move on with their lives, by Katherine Rowe in Acta Paediatrica, First published: 18 December 2019 [https://doi.org/10.1111/apa.15054] Abstract: Aim: The aim of this study was to document … Continue reading
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Tagged children, education support, Katherine Rowe, paediatric ME, self management, teenagers, young people
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Paediatric CFS patients’ & parents’ perceptions of recovery
Paediatric chronic fatigue syndrome patients’ and parents’ perceptions of recovery, by Matthew Robert Harland, Roxanne Morin Parslow, Nina Anderson, Danielle Byrne, Esther Crawley in BMJ Paediatrics Open Vol 3, #1, Dec 2, 2019 Research abstract: What is known about the … Continue reading
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Tagged adolescents, children, Danielle Byrne, Dr Esther Crawley, Matthew Robert Harland, Nina Anderson, paediatric CFS, recovery, Roxanne Morin Parslow, teenagers
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Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2)
Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2), by by David Tuller, DrPH in Virology blog, 22 November 2019 WAMES has joined 55 clinicians & scientists and 63 other organisations in signing this protest … Continue reading
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Tagged BMJ, British medical Journal, children, David Tuller, Dr Esther Crawley, Lightning process, paediatric CFS, SMILE trial, Virology blog
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