Tag Archives: data sharing

PACE-gate: when clinical trial evidence meets open data access

Article abstract: Science is not always plain sailing and sometimes the voyage is across an angry sea. A recent clinical trial of treatments for chronic fatigue syndrome (the PACE trial) has whipped up a storm of controversy. Patients claim the … Continue reading

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Prof Peter White says: If my team’s research on ME is rejected, the patients will suffer

Guardian opinion piece, by Peter White, 20 September 2016: ‘If my team’s research on ME is rejected, the patients will suffer’ Sufferers of chronic fatigue syndrome have been neglected too long. But our Pace trials show the right talking and … Continue reading

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Dr Tuller’s questions for Lancet Editor Dr Horton on handling of PACE trial issues

Virology blog post, by David Tuller DrPH, 1 September 2016: Trial By Error, Continued: My Questions for Lancet Editor Richard Horton  In January, I posted a list of the questions I still wanted to ask the PACE authors, who have … Continue reading

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Professor says tribunal was right to order release of PACE trial data

The Conversation blog post, by Prof Jo Edwards, 26 August 2016: Tribunal was right to order release of chronic fatigue trial data After nearly four months deliberation a tribunal has dismissed an appeal made by Queen Mary University of London (QMUL) … Continue reading

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The cost of fighting PACE trial data-sharing

johnthejack blog post, 29 June 29 2016: Using public money to keep publicly funded data from the public After publication of the PACE trial comparing different interventions (Cognitive Behavioural Therapy [CBT], Graded Exercise Therapy [GET], Adaptive Pacing Therapy and Specialist Medical Care) for … Continue reading

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PLOS One data sharing policy and PACE trial update

Quick thoughts blog post by Prof James C Coyne, 24 May 2016: The unfolding story of removal of data from a PLOS One article A data set included in a 2015 PLOS One article has been removed, leaving the article … Continue reading

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Probing an untrustworthy Cochrane review of exercise for CFS

Blog post by Prof James C Coyne, 23 April 2016: Probing an untrustworthy Cochrane review of exercise for “chronic fatigue syndrome” From my work in progress: My ongoing investigation so far has revealed that the 2016 Cochrane review misrepresents what … Continue reading

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PLOS One journal restates position on data sharing to Prof Coyne

In the standoff over release of the PACE PLOS One trial data, has the journal just blinked? by James Coyne, 7 April 2016 I just received (April 7, 2016) another communication from the Managing Editor of PLOS One reporting  an … Continue reading

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PLOS One journal asks researchers for release of PACE trial data

The PACE trial researchers published an article in PLOS One in 2012, a journal that requires authors to allow other researchers access to their data. PLOS ONE notice: Update on follow up, 7 Mar 2016 PLOS ONE is actively following up … Continue reading

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Patients, scientists fight over CFS/ME research-data access

Wall Street Journal article,  by Amy Dockser Marcus, 7 March 2016: Patients, Scientists Fight Over Research-Data Access Some scientists balk at disclosing details in study of chronic fatigue syndrome A controversy surrounding a study of chronic fatigue syndrome is prompting … Continue reading

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