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Research: Fitbit trackers & PROMs help monitor ME/CFS activity
Activity monitoring and patient-reported outcome measures in ME/CFS patients A small Norwegian study from the team led by Prof Olav Mella and Dr Oystein Fluge trialled wearable activity trackers and questionnaires to monitor heart rate and activity to aid pacing … Continue reading
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Tagged activity trackers, DePaul Symptom Questionnaire, Dr Oystein Fluge, DSQ-SF, Fitbit, heart rate monitoring, Ingrid G Rekeland, Kari Sorland, Karl J Tronstad, Kine Alme, Kristin Risa, Olav Dahl, Ove Bruland, Prof Olav Mella, PROMS, SF-36, Short form 36, wearable sensor
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Research: CAN connectivity predicts symptoms in ME/CFS
Cortical autonomic network connectivity predicts symptoms in myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS), by Mark A Zinn, Leonard A Jason in International Journal of Psychophysiology Vol 170, Dec 2021, Pages 89-101 [doi.org/10.1016/j.ijpsycho.2021.10.004] Highlights The findings of this study contribute … Continue reading
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Tagged autonomic nervous system, central autonomic network, DePaul Symptom Questionnaire, eLORETA, Mark A Zinn, Prof Leonard Jason
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Medical care situation of people with ME/CFS in Germany
Medical care situation of people with Myalgic Encephalomyelitis /Chronic Fatigue Syndrome in Germany, by Laura Froehlich, Daniel B.R. Hattesohl, Leonard A. Jason, Carmen Scheibenbogen, Uta Behrends, Manuel Thoma in Medicina Vol 57, #7, p 646, June 23, 2021 [doi.org/10.3390/medicina57070646] This … Continue reading
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Tagged Carmen Scheibenbogen, Daniel BR Hattesohl, DePaul Symptom Questionnaire, Germany, healthcare services, Laura Froehlich, Manuel Thoma, Prof Leonard Jason, Uta Behrends
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The DePaul Symptom Questionnaire-2: a validation study
The DePaul Symptom Questionnaire-2: a validation study, by Helen Bedree, Madison Sunnquist & Leonard A Jason in Journal Fatigue: Biomedicine, Health & Behavior Vol 7, 2019 – Issue 3, pp 166-179 [https://doi.org/10.1080/21641846.2019.1653471] Research abstract: Background: The DePaul Symptom Questionnaire … Continue reading
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Tagged case definitions, DePaul Symptom Questionnaire, diagnosis, Helen Bedree, Madison L Sunnquist, Prof Leonard Jason
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Autonomic function in ME & CFS: comparing self-report & objective measures
Autonomic dysfunction in myalgic encephalomyelitis and chronic fatigue syndrome: comparing self-report and objective measures, by Jane Kemp, Madison Sunnquist, Leonard A Jason, Julia L Newton in Clin Auton Res [Preprint 21 May 2019] Letter extracts: Myalgic encephalomyelitis (ME) and … Continue reading
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Tagged autonomic dysfunction, COMPASS, Composite Autonomic Symptom Scale, DePaul Symptom Questionnaire, DSQ, Heart rate variability, HRV, Jane Kemp, Madison L Sunnquist, Prof Julia Newton, Prof Leonard Jason
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The development of the DePaul symptom questionnaire: original, expanded, brief & pediatric versions
The development of the DePaul symptom questionnaire: Original, expanded, brief and pediatric versions, by Leonard A Jason, Madison Sunnquist in Frontiers in Pediatrics, 6 Nov 2018 One of the key requirements of a reliable case definition is the use of standardized procedures for assessing … Continue reading
The development of an instrument to assess post-exertional malaise in patients with ME & CFS
The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and chronic fatigue syndrome, by Leonard A Jason, Carly S Holtzman, Madison Sunnquist, Joseph Cotler in Journal of Health Psychology, 24 Oct 2018 [Preprint] Research abstract: Post-exertional malaise, … Continue reading
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Tagged assessment of symptoms, Carly S Holtzman, Carly S HolzmAN, DePaul Symptom Questionnaire, Joseph Cotler, Madison L Sunnquist, PEM, Post-exertional malaise, Prof Leonard Jason
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Integration of DNA methylation & health scores identifies subtypes in ME/CFS
Research abstract: Integration of DNA methylation & health scores identifies subtypes in myalgic encephalomyelitis/chronic fatigue syndrome, by Wilfred C de Vega, Lauren Erdman, Suzanne D Vernon, Anna Goldenberg & Patrick O McGowan in Epigenomics. 2018 Apr 25. doi: 10.2217/epi-2017-0150. [Epub … Continue reading
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Tagged Anna Goldenberg, clinical subtyping, DePaul Symptom Questionnaire, DNA methylation, Dr Patrick O McGowan, Dr Suzanne Vernon, epigenetics, Lauren Erdman, RAND-36 Short Form Survey, sub-groups, Wilfred C de Vega
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Differentiating MS from ME & CFS
Research abstract: Differentiating Multiple Sclerosis from Myalgic Encephalomyelitis and Chronic Fatigue Syndrome, by LA Jason, D Ohanian, A Brown. M Sunnquist, S McManimen, L Klebek, P Fox and M Sorenson in Insights in Biomedicine Vol. 2 No. 2:11 2017 Multiple Sclerosis (MS), Myalgic … Continue reading
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Tagged Abigail A Brown, DePaul Symptom Questionnaire, Diana Ohanian, L Klebek, Madison L Sunnquist, Matthew Sorenson, MS, Multiple Sclerosis, P Fox, Prof Leonard Jason, Stephanie L McManimen
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A better way to measure ME/CFS experience is needed
Research abstract: PURPOSE: Debilitating fatigue is a core symptom of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS); however, the utility of patient-reported symptom outcome measures of fatigue for ME/CFS patients is problematic due to ceiling effects and issues with reliability and validity. … Continue reading
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Tagged DePaul Symptom Questionnaire, Dr Suzanne Vernon, MFI scales, Multidimensional Fatigue Inventory, Patient-Reported Outcome Measures, PROMS, SF-36
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