Tag Archives: Dr Esther Crawley

“It’s not one size fits all”; the use of videoconferencing for delivering therapy in a Specialist Paediatric CFS Service

“It’s not one size fits all”; the use of videoconferencing for delivering therapy in a Specialist Paediatric Chronic Fatigue Service by Andrew Haig-Ferguson, Maria Loades, Charlotte Whittle, Rebecca Read, Nina Higson-Sweeney, Lucy Beasant, Jennifer Starbuck, Esther Crawley in Internet Interventions Volume 15, … Continue reading

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Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME

Adolescent’s descriptions of fatigue, fluctuation and payback in chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): Interviews with  adolescents and parents, by Roxanne M Parslow, Nina Anderson, Danielle Byrne, Alison Shaw, Kirstie L Haywood, Esther Crawley in BMJ Paediatrics Open Vol 2, #1, December 4, 2018 What this study hopes … Continue reading

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Using the internet to cope with CFS/ME in adolescence

Using the internet to cope with chronic fatigue syndrome/ myalgic encephalomyelitis in adolescence: a qualitative study, by Amberly Brigden, Julie Barnett, Roxanne Morin Parslow, Lucy Beasant, Esther Crawley in BMJ Paediatrics Open Vol. 2, #1 [Published: August 23, 2018] Background: Adolescents are increasingly using online resources … Continue reading

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Childhood sleep & adolescent CFS/ME

Research abstract: Childhood sleep and adolescent chronic fatigue syndrome (CFS/ME): evidence of associations in a UK birth cohort, by SM Collin, T Norris, P Gringras, PS Blair, K Tilling, E Crawley in Sleep Med. 2018 Jun;46:26-36. OBJECTIVE/BACKGROUND: Sleep abnormalities are characteristic of … Continue reading

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Pediatric CFS: Dr Crawley’s perspective

Article abstract: Pediatric chronic fatigue syndrome: current perspectives, by Esther Crawley in Dove Press  Vol 9, #4, pp 27—33 [Published March 29, 2018] Pediatric chronic fatigue syndrome is an important illness as it is relatively common and also very disabling with … Continue reading

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Childhood sleep & adolescent CFS/ME

Research abstract: Childhood sleep and adolescent chronic fatigue syndrome (CFS/ME): Evidence of associations in a UK birth cohort, by Simon M Collin, Tom Norris, Paul Gringras, Peter S Blair, Kate Tilling, Esther Crawley in Sleep Medicine [Preprint January 31, 2018] Highlights: Children … Continue reading

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The International collaborative on fatigue following infection (COFFI)

Article abstract: The international collaborative on fatigue following infection (COFFI), by Ben Z Katz, Simon M Collin, Gabrielle Murphy, Rona Moss-Morris, Vegard Bruun Wyller, Knut-Arne Wensaas, Jeannine L.A. Hautvast, Chantal P Bleeker-Rovers, Ute Vollmer-Conna, Dedra Buchwald, Renée Taylor, Paul Little, … Continue reading

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CFS/ME symptom-based phenotypes & 1 year treatment outcomes in UK & Netherlands

Research abstract: Chronic fatigue syndrome (CFS/ME) symptom-based phenotypes and 1-year treatment outcomes in two clinical cohorts of adult patients in the UK and The Netherlands, by  Simon M. Collin, Jon Heron, Stephanie Nikolaus, Hans Knoop, Esther Crawley in Journal of Psychosomatic Research Vol. 104, … Continue reading

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Health care resource use by patients before & after a diagnosis of CFS/ME

Health care resource use by patients before and after a diagnosis of chronic fatigue syndrome (CFS/ME): A clinical practice research datalink study, by Simon Collin, Inger Bakken, Irwin Nazareth, Esther Crawley, & Peter D. White in BMC Family Practice. 18 20017 Research abstract: Background: Our … Continue reading

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SMILE trial recommends Lightning Process for children with CFS

The publication of the results of the controversial SMILE trial has caused a flurry of concerned responses in the media, which we will report on later. Clinical and cost-effectiveness of the Lightning Process in addition to specialist medical care for … Continue reading

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