Tag Archives: Dr Esther Crawley

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME: prioritisation through card ranking

Posted on 01/23/2020 by wames

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking, by Roxanne M. Parslow, Nina Anderson, Danielle Byrne, Kirstie L Haywood, Alison Shaw & Esther … Continue reading →

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Paediatric CFS patients’ & parents’ perceptions of recovery

Posted on 12/17/2019 by wames

Paediatric chronic fatigue syndrome patients’ and parents’ perceptions of recovery, by Matthew Robert Harland, Roxanne Morin Parslow, Nina Anderson, Danielle Byrne, Esther Crawley in BMJ Paediatrics Open Vol 3, #1, Dec 2, 2019   Research abstract: What is known about the … Continue reading →

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Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2)

Posted on 11/25/2019 by wames

Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2), by by David Tuller, DrPH in Virology blog, 22 November 2019   WAMES has joined 55 clinicians & scientists and 63 other organisations in signing this protest … Continue reading →

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Developing & pretesting a new patient reported outcome measure for paediatric CFS/ME

Posted on 11/18/2019 by wames

Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME): cognitive interviews with children, by Roxanne M. Parslow, Alison Shaw, Kirstie L Haywood, Esther Crawley in Journal of Patient-Reported Outcomes Vol 3, p 67 [First … Continue reading →

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Academics object to the continued publication of the Lightning Process for children study

Posted on 09/02/2019 by wames

Trial By Error: an open letter to Dr Godlee about BMJ’s ethically bankrupt actions, by David Tuller in Virology blog, 28 August 2019   I have sent the following letter to Dr Fiona Godlee, editorial director of BMJ, about Archives … Continue reading →

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Depressive symptoms at age 9-13 & chronic disabling fatigue at aged 16

Posted on 08/16/2019 by wames

Depressive symptoms at age 9-13 and chronic disabling fatigue at age 16: a longitudinal study, by Simon M Collin, Tom Norris, Carol Joinson, Maria E Loades, Glyn Lewis, Stephen A Stansfeld, Esther Crawley in  Journal of Adolescence Vol 75, pp … Continue reading →

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MAGENTA trial comment: ‘Targeting activity levels in ME/CFS

Posted on 08/02/2019 by wames

Michiel Tack queries some conclusions of the recently published MAGENTA trial paper. Physical activity patterns among children and adolescents with mild-to-moderate chronic fatigue syndrome/myalgic encephalomyelitis, by Emma Solomon-Moore, Russell Jago, Lucy Beasant, Amberly Brigden, Esther Crawley in BMJ Paediatrics Open … Continue reading →

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“It’s not one size fits all”; the use of videoconferencing for delivering therapy in a Specialist Paediatric CFS Service

Posted on 01/10/2019 by wames

“It’s not one size fits all”; the use of videoconferencing for delivering therapy in a Specialist Paediatric Chronic Fatigue Service by Andrew Haig-Ferguson, Maria Loades, Charlotte Whittle, Rebecca Read, Nina Higson-Sweeney, Lucy Beasant, Jennifer Starbuck, Esther Crawley in Internet Interventions Volume 15, … Continue reading →

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Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME

Posted on 12/13/2018 by wames

Adolescent’s descriptions of fatigue, fluctuation and payback in chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): Interviews with  adolescents and parents, by Roxanne M Parslow, Nina Anderson, Danielle Byrne, Alison Shaw, Kirstie L Haywood, Esther Crawley in BMJ Paediatrics Open Vol 2, #1, December 4, 2018 What this study hopes … Continue reading →

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Using the internet to cope with CFS/ME in adolescence

Posted on 09/12/2018 by wames

Using the internet to cope with chronic fatigue syndrome/ myalgic encephalomyelitis in adolescence: a qualitative study, by Amberly Brigden, Julie Barnett, Roxanne Morin Parslow, Lucy Beasant, Esther Crawley in BMJ Paediatrics Open Vol. 2, #1 [Published: August 23, 2018] Background: Adolescents are increasingly using online resources … Continue reading →

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