Tag Archives: Dr Luis Nacul

The UK ME/CFS Biobank

The UK ME/CFS Biobank: A disease-specific biobank for advancing clinical research into myalgic encephalomyelitis/ chronic fatigue syndrome, by Eliana M. Lacerda, Kathleen Mudie, Caroline C. Kingdon, Jack D. Butterworth, Shennae O’Boyle, Luis Nacul in Frontiers in Neurology, 14 Nov 2018 [preprint Abstract: Myalgic encephalomyelitis/chronic … Continue reading

Posted in News | Tagged , , , , , , , | Leave a comment

Hand grip strength as a clinical biomarker for ME/CFS & disease severity

Hand grip strength as a clinical biomarker for ME/CFS and disease severity, by Luis C Nacul, Kathleen Mudie, Caroline Kingdon, Taane G Clark, Eliana M Lacerda in Frontiers in Neurology, 5 Nov 2018 [Preprint] Research abstract: Background: The diagnosis of myalgic encephalomyelitis (ME/CFS) … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on Hand grip strength as a clinical biomarker for ME/CFS & disease severity

EUROMENE – European co-operation to address gaps in ME/CFS understanding

EUROMENE – the European Network on ME/CFS Funded by COST – a European framework supporting trans-national cooperation among researchers, engineers and scholars across Europe – EUROMENE aims to create an integrated network of researchers on ME/CFS in Europe and beyond. The network … Continue reading

Posted in News | Tagged , , , | Comments Off on EUROMENE – European co-operation to address gaps in ME/CFS understanding

Functional status & well-being in people with ME/CFS compared with people with MS & healthy controls

Research abstract: Functional Status and Well-Being in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Compared with People with Multiple Sclerosis and Healthy Controls, by Caroline C. Kingdon, Erinna W. Bowman, Hayley Curran, Luis Nacul, Eliana M. Lacerda in PharmacoEconomics Open 2018 pp 1-12  [Online: 13 March 2018] Background: People with myalgic encephalomyelitis/chronic fatigue … Continue reading

Posted in News | Tagged , , , , , , , , , , | Comments Off on Functional status & well-being in people with ME/CFS compared with people with MS & healthy controls

Prevalence of & risk factors for severe cognitive & sleep symptoms in ME/CFS & MS

Research abstract: Prevalence of and risk factors for severe cognitive and sleep symptoms in ME/CFS and MS, by Jain V, Arunkumar A, Kingdon C, Lacerda E, Nacul L in BMC Neurol. 2017 Jun 20;17(1):117 Background: There are considerable phenotypic and … Continue reading

Posted in News | Tagged , , , , , , , , | Comments Off on Prevalence of & risk factors for severe cognitive & sleep symptoms in ME/CFS & MS

Selection bias & disease misclassification undermine the validity of ME/CFS studies

Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome has been a controversial diagnosis, resulting in tensions between patients and professionals providing them with care. A major constraint limiting progress has been the lack of a ‘gold standard’ for diagnosis; with a number … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on Selection bias & disease misclassification undermine the validity of ME/CFS studies

The UK ME/CFS Biobank for biomedical research on ME/CFS & MS

Overview of a UK bioresource: The UK ME/CFS Biobank was launched in August 2011 following extensive consultation with professionals and patient representatives. The bioresource aims to enhance research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), related to pathophysiology, biomarkers and therapeutic … Continue reading

Posted in News | Tagged , , , , | Comments Off on The UK ME/CFS Biobank for biomedical research on ME/CFS & MS

Differing case definitions point to the need for an accurate diagnosis of ME/CFS

Research article: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is characterised by unexplained and persistent or recurrent incapacitating fatigue accompanied by a variety of symptoms and substantial reductions in previous levels of occupational, educational, social and/or personal activity [1,2]. Given the absence … Continue reading

Posted in News | Tagged , , | Comments Off on Differing case definitions point to the need for an accurate diagnosis of ME/CFS