Tag Archives: Freedom of Information request

GMC told to tell Dr Myhill reason for not investigating PACE complaint

Dr Myhill blog post, 1 Oct 2019: My Complaint to the GMC about the PACE authors   1 OCTOBER 2019 – UPDATE – ICO SLAPS DECISION NOTICE ON GMC! You can download the full Signed Decision Notice here – ICO Full … Continue reading

Posted in News | Tagged , , , , , | Comments Off on GMC told to tell Dr Myhill reason for not investigating PACE complaint

PACE Trial Committee & Team Minutes available online

PACE trial minutes John Peters from Swansea requested the minutes of meetings of the Trial Steering Committee and Trial Management Group of the PACE trial. Queen Mary University of London refused on the grounds that it would be ‘prejudicial to … Continue reading

Posted in News | Tagged , , , , | Comments Off on PACE Trial Committee & Team Minutes available online

Trial By Error: The NICE “Topic Expert” Reports (FOI)

Virology blog post, by David Tuller, 11 September 2017: Trial By Error: The NICE “Topic Expert” Reports Freedom of Information requests to NICE My first recent freedom of information request to the National Institute for Health and Care Excellence (NICE) … Continue reading

Posted in News | Tagged , , , , | Comments Off on Trial By Error: The NICE “Topic Expert” Reports (FOI)

NICE takes a dim view of foreign work on ME/CFS

ME Association news blog post, 24 October 2016: NICE takes a dim view of foreign work on ME/CFS – Robin Ellis Freedom of Information request The main supplier of England’s drugs and treatment guidelines, the National Institute for Health and Clinical … Continue reading

Posted in News | Tagged , , , , , , , | Comments Off on NICE takes a dim view of foreign work on ME/CFS

Professor says tribunal was right to order release of PACE trial data

The Conversation blog post, by Prof Jo Edwards, 26 August 2016: Tribunal was right to order release of chronic fatigue trial data After nearly four months deliberation a tribunal has dismissed an appeal made by Queen Mary University of London (QMUL) … Continue reading

Posted in News | Tagged , , , , , , , | Comments Off on Professor says tribunal was right to order release of PACE trial data

Tribunal orders release of PACE data

ME Action blog post, by Alex Anderssen, 16 August 2016: Tribunal orders release of PACE data A tribunal panel has ordered Queen Mary University of London (QMUL) to release anonymised data from the PACE trial to Mr. Alem Matthees, a patient … Continue reading

Posted in News | Tagged , , , , , , , , , , | Comments Off on Tribunal orders release of PACE data

QMUL spent £250,000 on PACE data tribunal

MEAction blog post by Alex Anderssen, 9 July 2016: QMUL spend £250,000 on PACE data tribunal Queen Mary University of London (QMUL) have revealed that they spent £250,000 on legal fees in the recent tribunal concerning the release of anonymised data … Continue reading

Posted in News | Tagged , , , | Comments Off on QMUL spent £250,000 on PACE data tribunal

The cost of fighting PACE trial data-sharing

johnthejack blog post, 29 June 29 2016: Using public money to keep publicly funded data from the public After publication of the PACE trial comparing different interventions (Cognitive Behavioural Therapy [CBT], Graded Exercise Therapy [GET], Adaptive Pacing Therapy and Specialist Medical Care) for … Continue reading

Posted in News | Tagged , , , , , , , , , , | Comments Off on The cost of fighting PACE trial data-sharing

Misleading medical research underpins disability cuts

Centre for Welfare Reform report, by George Faulkner, 14 April 2016: In the Expectation of Recovery: misleading medical research and welfare reform Description / abstract: The attack by the UK Government on disability benefits has only just started to receive mainstream … Continue reading

Posted in News | Tagged , , , , , , , , , , , | Comments Off on Misleading medical research underpins disability cuts

4 scientists make PACE trial FOI request

MEAction article: Davis, Tuller, Racaniello and Levin issue FOI request for PACE data Yesterday [16 Dec] four scientists, led by world-famous geneticist Professor Ronald Davis, added to the pressure for scientific transparency on the PACE trial by making a request … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on 4 scientists make PACE trial FOI request