Tag Archives: GET

CFS treatment ‘should be withdrawn’

BBC newsbeat report, 8 May 2019: Chronic fatigue syndrome treatment ‘should be withdrawn’ A common treatment for chronic fatigue syndrome should be scrapped immediately, according to one of the UK’s leading experts in the illness. Dr Charles Shepherd says graded … Continue reading

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Forward ME Group writes to the Times: patients are ‘not simply deconditioned’

Times online letter, 22 March 2018: TREATMENT FOR PATIENTS WITH ME Sir, The article by Tom Whipple, (“Findings of £5m ME chronic fatigue study ‘worthless’,” Mar 22) highlights a long-standing problem. The National Institute for Health and Care Excellence (Nice) … Continue reading

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Rethinking the treatment of CFS – a reanalysis of the PACE trial

Research abstract: Rethinking the treatment of chronic fatigue syndrome—a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT by Carolyn E. Wilshire, Tom Kindlon, Robert Courtney, Alem Matthees, David Tuller, Keith Geraghty and Bruce … Continue reading

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1,000 signatures in 12 hours! e-petition to remove GET & CBT from NICE guidance immediately

Change.org petition, started by Robin Brown, 23 Feb 2017: Stop harming ME/CFS patients – take CBT/GET out of NICE guidelines NOW Robin Brown started this petition to Director, Centre for Guidelines, NICE & director Prof. Mark Baker NICE has promised to … Continue reading

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Post-Exertional Malaise & GET in ME/CFS – a guide to the research

ME Action blog post, 9 Feb 2018: Post-Exertional Malaise & GET in ME/CFS – a guide to the research “Post-Exertional Malaise & Graded Exercise Therapy in ME/CFS” Primer, December 2017 A member of #MEAction Network Australia has written a primer, outlining the … Continue reading

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An analysis of Dutch studies confirms CBT with a GA protocol is not effective for CFS & ME

Research abstract: An analysis of Dutch hallmark studies confirms the outcome of the PACE trial: cognitive behaviour therapy with a graded activity protocol is not effective for chronic fatigue syndrome and Myalgic Encephalomyelitis, by FNM. Twisk and LAMM Corsius in General … Continue reading

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Rethinking the treatment of CFS – a reanalysis & evaluation of findings from a recent major trial of graded exercise and CBT

Research abstract: Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT, by Carolyn Wilshire, Tom Kindlon, Robert Courtney, Alem Matthees, David Tuller, Keith Geraghty and Bruce Levin [Preprint … Continue reading

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The NICE guidelines – starting again?

mrspoonseeker blog post, 21 Jan 2018: The NICE Guidelines – Starting Again? N.B. Please sign the NICE Guidelines Committee petition – see below. There was some encouraging feedback from the recent NICE ME/CFS Guidelines Stakeholder meeting, an early milestone in the long … Continue reading

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Dr Myhill’s complaint to the GMC about PACE

Dr Myhill has complained to the GMC about the PACE authors The GMC is the UK doctor’s regulatory authority – the General Medical Council. Patient support is sought from all patients who feel they have been harmed by PACE. You do not have to … Continue reading

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ME/CFS patients’ reports of symptom changes following CBT, GET & pacing treatments

Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome patients’ reports of symptom changes following cognitive behavioural therapy, graded exercise therapy and pacing treatments: Analysis of a primary survey compared with secondary surveys, by Keith Geraghty, Mark Hann, Stoyan Kurtev in Journal of Health … Continue reading

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