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Safe Long COVID & ME/CFS rehabilitation
Safe Long COVID Rehabilitation a video from Long COVID Physio Physiotherapists living with Long COVID have produced a short video [5 mins 15] for fellow physios explaining the importance of providing safe rehabilitation for people with LC and ME/CFS. … Continue reading
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Tagged CFS, flare-ups, GET, graded exercise therapy, Long Covid Physio, Myalgic Encephalomyelitis, rehabilitation, relapses, Stop Rest Pace
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Cwm Taf Morgannwg UHB say they do not offer GET for ME/CFS
Cwm Taf Morgannwg UHB is “aware of the revised ME/CFS NICE guideline” WAMES has been asking Health Boards in Wales what plans they have to implement NICE guidelines, whether they intend to consult with patients and how they think … Continue reading
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Tagged CTUHB, Cwm Taf University Health Board, GET, graded exercise therapy, Lauren Edwards, long Covid, NICE ME/CFS guideline, Paul Mears
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The evidence base for physiotherapy in ME/CFS
The evidence base for physiotherapy in myalgic encephalomyelitis/chronic fatigue syndrome when considering post-exertional malaise: a systematic review and narrative synthesis, by Marjon E A Wormgoor & Sanne C Rodenburg in Journal of Translational Medicine vol 19, Article no: 1 (2021) … Continue reading
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Tagged activity pacing, body awareness therapy, GET, graded exercise therapy, Marjon EA Wormgoor, orthostatic training, physiotherapy, Post-exertional malaise, Sanne C Rodenburg
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Bias caused by reliance on patient-reported outcome measures in non-blinded randomized trials
Bias caused by reliance on patient-reported outcome measures in non-blinded randomized trials: an in-depth look at exercise therapy for chronic fatigue syndrome by Michiel Tack, David M Tuller & Caroline Struthers in Fatigue: Biomedicine, Health & Behavior Vol 8, 2020 … Continue reading
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Tagged Caroline Struthers, GET, graded exercise therapy, Michiel Tack, Patient reported outcome measure, Prof David Tuller, PROMS, response bias
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NICE draft ME/CFS guideline recommends energy management, rest & physical maintenance
NICE draft ME/CFS guideline: energy management, rest & physical maintenance The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments for inclusion in … Continue reading
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Tagged energy envelope theory, energy management, exercise programmes, GET, graded exercise therapy, National Institute for Health and Care Excellence, NICE guideline ME/CFS, physical condition, rest
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NICE draft ME/CFS guideline says NO to graded exercise therapy (GET) cure!
NICE draft ME/CFS guideline now out for consultation The draft of the revised NICE guideline has been published on November 10th 2020. It will be open for consultation until December 22nd. As a stakeholder WAMES will be responding to … Continue reading
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Tagged exercise, GET, graded exercise therapy, NICE guideline ME/CFS
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Graded Exercise Therapy doesn’t restore the ability to work in ME/CFS. Rethinking of a Cochrane Review
Graded Exercise Therapy doesn’t restore the ability to work in ME/CFS. Rethinking of a Cochrane review, by Mark Vink, Friso Vink-Niese in Work vol. 66, no. 2, pp. 283-308, 20 July 2020 [doi:10.3233/WOR-203174] Research abstract: Background: Cochrane recently amended its … Continue reading
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Tagged chronic fatigue, Cochrane review, Friso Vink-Niese, GET, graded exercise therapy, Interpretative bias, Mark Vink, occupational health, rehabilitation, work
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Severe ME in children
Severe ME in children, by Nigel Speight in Healthcare Vol 8, #3 p 211, July 14, 2020 [This article belongs to the Special Issue ME/CFS] Guideline abstract The current problem regarding Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is the … Continue reading
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Tagged CBT, children, cognitive behavioural therapy, Dr Nigel Speight, Fabricated or Induced Illness, GET, graded exercise therapy, immunoglobulin, paediatric ME, PEM, Pervasive Refusal Syndrome, Post-exertional malaise, severe ME
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NICE Statement about graded exercise therapy in the context of COVID-19
Statement about graded exercise therapy in the context of COVID-19 NICE is aware of concerns about graded exercise therapy (GET) for people who are recovering from COVID-19. NICE’s guideline on ME/CFS (CG53) was published in 2007, many years before … Continue reading
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Tagged Coronavirus, COVID-19, GET, graded exercise therapy, ME Association, NICE guidance, NICE guideline ME/CFS
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The concept of ‘illness without disease’ impedes understanding of CFS: a response to Sharpe & Greco
The concept of ‘illness without disease’ impedes understanding of chronic fatigue syndrome: a response to Sharpe and Greco, by Steven Lubet, David Tuller in BMJ Medical Humanities. Published Online First: 01 June 2020. [doi: 10.1136/medhum-2019-011807] Article abstract: In a … Continue reading
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Tagged biomedical research, CBT, cognitive behavioural therapy, GET, graded exercise therapy, Monica Greco, PACE trial, Prof David Tuller, Prof Michael Sharpe, psychosomatic, Steven Lubet
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