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With severe ME, everything is cut off from possibility
by Greg Crowhurst, Stonebird
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Tagged Greg Crowhurst, severe ME, Stonebird
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Expectations of recovery in severe ME could impose unreasonable, unrealistic, even fatal demands
Stonebird blog post, Mar 2017: 25% Group and Stonebird Response to BACME (British Association for ME/CFS), article on care provision for severe ME Response to BACME Working Group on Severe CFS/ME Shared Clinical Practice Document Version 1 When you work … Continue reading
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Tagged 25% ME Group, BACME, British Association for CFS/ME, Dr Mark Vink, Greg Crowhurst, Moment approach, severe ME, Stonebird
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The misrepresentation of ME in nursing
Article abstract: Re : Diagnosing and managing chronic fatigue syndrome, by D Roberts in Nursing in Practice 89 (2016) Every nurse has a duty to speak up about wrong practice, or the potential to do harm, I have grave concerns … Continue reading
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Tagged D Roberts, Greg Crowhurst, nursing care, severe ME
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Responses to ‘Fear of exercise’ report in BMJ
The BMJ reports on the latest study from the PACE trial published on 13 January in the Lancet Psychiatry, with an article by Ingrid Torjesen. A number of letters in response challenging the research conclusions have been published online including those by: Prof … Continue reading
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Tagged BMJ, British medical Journal, Carolyn Wilshire, Dr Cahrles Shephard, Dr William Weir, exercise phobia, Greg Crowhurst, Ingrid Torjesen, Lancet Psychiatry, PACE trial, Prof Jonathan Edwards, Simon Lawrence, Tom Kindlon
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Paralysis in ME
Study abstract Paralysis is a symptom that is rarely highlighted in the literature for ME, yet is found amongst the most severely ill ME population and even some of those not so severely affected. My wife has experienced it for … Continue reading
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Tagged Greg Crowhurst, paralysis, severe ME, Stonebird
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