Tag Archives: IACFS/ME

30% of people with ME/CFS in Japan are severely affected

Article abstract: In 2014, the Japanese Ministry for Health, Labour, and Welfare commissioned a national patient survey of ME/CFS patients in  Japan. Japan ME Association president Mieko Shinohara graciously summarizes the survey results here for us, which revealed that 30% of ME/CFS patients … Continue reading

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Robust evidence of an underlying biological process in ME/CFS

Miriam Tucker reports on the overwhelming evidence for the biological basis for ME/CFS which was presented at the IACFS/ME conference in the USA in October 2016: Biomarker Research Advances in ‘Chronic Fatigue Syndrome’, by Miriam E. Tucker in Medscape Medical … Continue reading

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12th IACFS/ME conference report

The 12th International Association of CFS/ME Conference was held in Fort Lauderdale, USA on 27 October 2016 The conference, opened by the president Fred Friedberg (NY, USA), was a day for patients, while the medical and research professionals could attend … Continue reading

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9 potential diagnostic tests for ME/CFS

shoutoutaboutme blog post, by Russell Logan, 31 July 2016: 9 potential diagnostic tests for ME/CFS: Highlights of the IACFS submission to NIH RFI on new research strategies Though there are as yet no readily available, well-accepted, objective diagnostic tests for ME and CFS, work … Continue reading

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Cognitive-behaviour therapy: why is it so vilified in the CFS community?

Editorial by Fred Friedberg in Biomedicine, Health & Behavior: Cognitive-behavior therapy (CBT) is a well-established psychosocial intervention for psychiatric disorders, pain management, and stress related to medical conditions.[1] It has rarely provoked controversy, much less outright hostility. That is, until it … Continue reading

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Doing research in ME/CFS with ME/CFS

Article introduction: My name is Dr. Keith Geraghty, I am an Honorary Research Fellow at the University of Manchester in the Centre for Primary Care. My main research interests are patient safety and harms, doctor-patient relations, medically unexplained illness and ME/CFS … Continue reading

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Chu says suicide in ME/CFS not always linked to depression and anxiety

Excerpt from article by Dr Lily Chu: Another reason I wanted to write about this topic is to encourage professionals and others to think about reasons for suicide beyond depression and anxiety. This is especially important for ME/CFS since many … Continue reading

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Dr Fred Friedberg on the meaning of ‘recovery’ in the PACE trial

Dr Fred Friedberg, IACFS/ME President comments: In a significant development regarding the controversial PACE trial, the largest and most influential behavioral treatment trial of CFS/ME to date, a recent open letter to the editor of the Lancet was published by a distinguished group of … Continue reading

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ME/CFS Primer for clinical practitioners (2014 revision)

The International Association for CFS/ME (IACFS/ME) has produced a revised version of their primer. Their goal is to provide the information necessary to understand, diagnose, and manage the symptoms of chronic fatigue syndrome  —also known as myalgic encephalomyelitis (ME/CFS). The … Continue reading

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ME/CFS Primer for clinical practitioners

The International Association for Chronic Fatigue Syndrome/ME (IACFS/ME) has published a Primer for clinical practitioners. It is available as a PDF file and is free to download, though donations are invited. A 42 page spiral bound print booklet can be … Continue reading

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