Tag Archives: Institute of Medicine

A comparison of case definitions for ME & CFS

Research abstract: A Comparison of Case Definitions for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome, by Madison Sunnquist, Leonard A Jason, P Nehrke, Ellken M Goudsmit in Chronic Dis Manag. 2017;2(2). pii: 1013. Epub 2017 May 21 Many professionals have described the … Continue reading

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Is SEID comparable to research case definitions of CFS?

Two groups of American researchers debate the appropriateness of using case definitions for research purposes. Article abstract: Mistaken conclusions about systemic exercise intolerance disease being comparable to research case definitions of CFS: a rebuttal to Chu et al., by Leonard A. Jason, Madison Sunnquist, Kristen … Continue reading

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New York Times: Getting it wrong on CFS

New York Times article, by Julie Rehmeyer and David Tuller, 18 March 2017: Getting It wrong on Chronic Fatigue Syndrome What are some of the treatment regimens that sufferers of chronic fatigue syndrome should follow? Many major medical organizations cite … Continue reading

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NICE takes a dim view of foreign work on ME/CFS

ME Association news blog post, 24 October 2016: NICE takes a dim view of foreign work on ME/CFS – Robin Ellis Freedom of Information request The main supplier of England’s drugs and treatment guidelines, the National Institute for Health and Clinical … Continue reading

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The Guardian asks: Is CFS finally being taken seriously?

Guardian article: Is chronic fatigue syndrome finally being taken seriously?, by David Cox, 4 April 2016 Once dismissed by many doctors as a psychological illness, new research suggests CFS has its roots in infection – and there is hope of successful … Continue reading

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Replacing ME and CFS with SEID is not the way forward

Abstract of discussion paper: Myalgic encephalomyelitis (ME), described in the medical literature since 1938, is characterized by distinctive muscular symptoms, neurological symptoms, and signs of circulatory impairment. The only mandatory feature of chronic fatigue syndrome (CFS), introduced in 1988 and redefined … Continue reading

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Tuller believes there is hope for CFS treatment & research in US

Health affairs blog article by David Tuller, February 4 2016: Re-examining Chronic Fatigue Syndrome Research And Treatment Policy In recent months, two developments have provided some degree of optimism to people with the illness variously called chronic fatigue syndrome, myalgic … Continue reading

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Beyond tired: an overview of the IOM report on CFS/SEID

Article: Beyond Tired: Is chronic fatigue syndrome a real medical condition? Yes, according to a report from the Institute of Medicine, which urges physicians to treat it accordingly, by Dolan, Darrach in Neurology Now, October/November 2015, Vol 11, Issue 5, … Continue reading

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12 US organisations lobby CDC about PACE trial

Solve ME/CFS Initiative Calls for Review of PACE Trial  20 Nov 2015 The Solve ME/CFS Initiative is one of 12 organizations that have signed a letter asking the heads of the Centers for Disease Control (CDC) and the Agency for … Continue reading

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It’s too good to be true that exercise can help CFS sufferers

In medicine, as in life, it is sensible to be cautious about claims that seem too good to be true. Daily Telegraph’s Doctor’s Diary: It’s too good to be true that exercise can help Chronic Fatigue Syndrome sufferers  [James Le … Continue reading

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