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Replacing ME and CFS with SEID is not the way forward
Abstract of discussion paper: Myalgic encephalomyelitis (ME), described in the medical literature since 1938, is characterized by distinctive muscular symptoms, neurological symptoms, and signs of circulatory impairment. The only mandatory feature of chronic fatigue syndrome (CFS), introduced in 1988 and redefined … Continue reading
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Tagged diagnosis, diagnostic criteria, Frank NM Twisk, Institute of Medicine, SEID, systemic exercise intolerance disease
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Tuller believes there is hope for CFS treatment & research in US
Health affairs blog article by David Tuller, February 4 2016: Re-examining Chronic Fatigue Syndrome Research And Treatment Policy In recent months, two developments have provided some degree of optimism to people with the illness variously called chronic fatigue syndrome, myalgic … Continue reading
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Tagged David Tuller, Institute of Medicine, IOM, LO, National Institutes of Health, NIH, PACE trial
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Beyond tired: an overview of the IOM report on CFS/SEID
Article: Beyond Tired: Is chronic fatigue syndrome a real medical condition? Yes, according to a report from the Institute of Medicine, which urges physicians to treat it accordingly, by Dolan, Darrach in Neurology Now, October/November 2015, Vol 11, Issue 5, … Continue reading
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Tagged chronic fatigue, Institute of Medicine, IOM, PEM, Post-exertional malaise, postural orthostatic tachycardia syndrome, POTS, SEID, Systemic exertion Intolerance Disease
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12 US organisations lobby CDC about PACE trial
Solve ME/CFS Initiative Calls for Review of PACE Trial 20 Nov 2015 The Solve ME/CFS Initiative is one of 12 organizations that have signed a letter asking the heads of the Centers for Disease Control (CDC) and the Agency for … Continue reading
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Tagged David Tuller, Inc., Institute of Medicine, IOM, Massachusetts CFIDS/ME & FM Association, ME Action, MEadvocacy.Org, New Jersey ME/CFS Association, Open Medicine Foundation, PACE trial, Pathways to prevention report, Phoenix Rising, ProHealth, Solve ME/CFS Initiative, Speak Up About ME, Vermont CFIDS Association, Wisconsin ME and CFS Association
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It’s too good to be true that exercise can help CFS sufferers
In medicine, as in life, it is sensible to be cautious about claims that seem too good to be true. Daily Telegraph’s Doctor’s Diary: It’s too good to be true that exercise can help Chronic Fatigue Syndrome sufferers [James Le … Continue reading
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Tagged Institute of Medicine, James Le Fanu, PACE trial, SEID
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Dr Leonard Jason’s reflections on SEID
Article abstract: The Institute of Medicine (IOM) in the US has recently proposed that the term Systemic Exertion Intolerance Disease (SEID) replace Chronic Fatigue Syndrome (CFS). In addition, the IOM proposed a new case definition for SEID, which includes substantial … Continue reading
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Tagged diagnostic criteria, Dr Leonard Jason, Institute of Medicine, IOM, SEID
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World Federation of Neurology writes about ME/CFS
Article extract: In summary, ME/CFS (SEID) is a serious, chronic, complex and systemic disease that often significantly limits the day-to-day activities of those affected. It is characterized by a prolonged, significant decrease in function; fatigue; post-exertional malaise; unrefreshing sleep; difficulties … Continue reading
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Tagged Institute of Medicine, IOM, Maggie L McNulty, SEID, World Federation of Neurology
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Challenge & defence of name SEID and IOM’s definition
Fink and Schröder challenge the validity of the IoM’s new name and definition of ME/CFS: Redefining Myalgic Encephalomyelitis/Chronic Fatigue Syndrome To the Editor: The Institute of Medicine (IOM) proposed a new name (systemic exertion intolerance disease) and diagnostic criteria for myalgic encephalomyelitis/chronic … Continue reading
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Tagged Andreas Schroder, definition, diagnostic criteria, Ellen Wright Clayton, Institute of Medicine, IOM, Per Fink, SEID, Systemic exertion Intolerance Disease
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ME/CFS: a real illness
Comment on the US Institute of Medicine’s report and choice of new name SEID by Prof Anthony Komaroff: Chronic fatigue syndrome (named by some as myalgic encephalomyelitis/chronic fatigue syndrome [ME/CFS]) frustrates many physicians. That is understandable because there are no … Continue reading
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Tagged Institute of Medicine, IOM, Pathways to prevention workshop, Prof Anthony Komaroff, SEID, Systemic exertion Intolerance Disease
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CFS v SEID as diagnostic criteria
Research abstract: Background: The Institute of Medicine has recommended a change in the name and criteria for chronic fatigue syndrome (CFS), renaming the illness systemic exertion intolerance disease (SEID). The new SEID case definition requires substantial reductions or impairments in … Continue reading
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Tagged diagnostic criteria, Dr Leonard Jason, Dr Suzanne Vernon, Institute of Medicine, Prof Julia Newton, SEID, Systemic exertion Intolerance Disease
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