Tag Archives: IOM

A comparison of case definitions for ME & CFS

Research abstract: A Comparison of Case Definitions for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome, by Madison Sunnquist, Leonard A Jason, P Nehrke, Ellken M Goudsmit in Chronic Dis Manag. 2017;2(2). pii: 1013. Epub 2017 May 21 Many professionals have described the … Continue reading

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Is SEID comparable to research case definitions of CFS?

Two groups of American researchers debate the appropriateness of using case definitions for research purposes. Article abstract: Mistaken conclusions about systemic exercise intolerance disease being comparable to research case definitions of CFS: a rebuttal to Chu et al., by Leonard A. Jason, Madison Sunnquist, Kristen … Continue reading

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New York Times: Getting it wrong on CFS

New York Times article, by Julie Rehmeyer and David Tuller, 18 March 2017: Getting It wrong on Chronic Fatigue Syndrome What are some of the treatment regimens that sufferers of chronic fatigue syndrome should follow? Many major medical organizations cite … Continue reading

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Tuller believes there is hope for CFS treatment & research in US

Health affairs blog article by David Tuller, February 4 2016: Re-examining Chronic Fatigue Syndrome Research And Treatment Policy In recent months, two developments have provided some degree of optimism to people with the illness variously called chronic fatigue syndrome, myalgic … Continue reading

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Beyond tired: an overview of the IOM report on CFS/SEID

Article: Beyond Tired: Is chronic fatigue syndrome a real medical condition? Yes, according to a report from the Institute of Medicine, which urges physicians to treat it accordingly, by Dolan, Darrach in Neurology Now, October/November 2015, Vol 11, Issue 5, … Continue reading

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12 US organisations lobby CDC about PACE trial

Solve ME/CFS Initiative Calls for Review of PACE Trial  20 Nov 2015 The Solve ME/CFS Initiative is one of 12 organizations that have signed a letter asking the heads of the Centers for Disease Control (CDC) and the Agency for … Continue reading

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Dr Leonard Jason’s reflections on SEID

Article abstract: The Institute of Medicine (IOM) in the US has recently proposed that the term Systemic Exertion Intolerance Disease (SEID) replace Chronic Fatigue Syndrome (CFS).  In addition, the IOM proposed a new case definition for SEID, which includes substantial … Continue reading

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World Federation of Neurology writes about ME/CFS

Article extract: In summary, ME/CFS (SEID) is a serious, chronic, complex and systemic disease that often significantly limits the day-to-day activities of those affected. It is characterized by a prolonged, significant decrease in function; fatigue; post-exertional malaise; unrefreshing sleep; difficulties … Continue reading

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Challenge & defence of name SEID and IOM’s definition

Fink and Schröder challenge the validity of the IoM’s new name and definition of ME/CFS: Redefining Myalgic Encephalomyelitis/Chronic Fatigue Syndrome To the Editor: The Institute of Medicine (IOM) proposed a new name (systemic exertion intolerance disease) and diagnostic criteria for myalgic encephalomyelitis/chronic … Continue reading

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ME/CFS: a real illness

Comment on the US Institute of Medicine’s report and choice of new name SEID by Prof Anthony Komaroff: Chronic fatigue syndrome (named by some as myalgic encephalomyelitis/chronic fatigue syndrome [ME/CFS]) frustrates many physicians. That is understandable because there are no … Continue reading

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