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Key scientists ask Lancet for independent re-analysis of PACE trial
Six eminent researchers, 5 from the USA, 1 from Britain, have sent an open letter to the Editor of the Lancet urging the appointment of an independent panel of researchers to investigate the journal’s reporting of the PACE trial in 2011, due to the … Continue reading
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Tagged Dr Arthur L Reingold, Dr Bruce Levin, Dr Richard Horton, Dr Vincent R Racaniello, Lancet, Leonard A Jason, PACE trial, Prof Jonathan Edwards, Ronald W Davis, Virology blog
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The need to list exclusionary illnesses for SEID
Research abstract: The Institute of Medicine recently proposed a new case definition for chronic fatigue syndrome (CFS), as well as a new name, Systemic Exertion Intolerance Disease (SEID). Contrary to the Fukuda et al.’s CFS case definition, there are few … Continue reading
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Tagged case definitions, exclusionary illnesses, Leonard A Jason, SEID, Systemic exertion Intolerance Disease
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Comparison of consensus & empirical ME/CFS definitions & criteria
Research abstract: Background: Since the publication of the CFS case definition [Fukuda K, Straus SE, Hickie I, Sharpe MC, Dobbins JG, Komaroff A. The chronic fatigue syndrome: a comprehensive approach to its definition and study. Ann Intern Med. 1994;121:953-959], there … Continue reading
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Tagged case definitions, criteria, Dr Suzanne Vernon, Leonard A Jason, Prof Julia Newton
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Measuring substantial reductions in activity
Research abstract The case definitions for Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS), ME, and CFS each include a disability criterion requiring substantial reductions in activity in order to meet diagnostic criteria. Difficulties have been encountered in defining and operationalizing the substantial … Continue reading
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Tagged activity, Leonard A Jason, measuring disability, SF-36
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Are stamina and fatigue polar opposites?
Research abstract: Most individuals with Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS) (Carruthers et al., 2003), Myalgic Encephalomyelitis (ME) (Carruthers et al., 2011), and chronic fatigue syndrome (CFS) (Fukuda et al., 1994) indicate that they experience fatigue and sharp decreases in energy … Continue reading
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Tagged fatigue, Leonard A Jason, stamina
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More severe symptoms & impairment in ME than in CFS confirmed
Research abstract A revised sudden onset case definition for Myalgic Encephalomyelitis (ME) has been developed (Jason, Damrongvachiraphan, etal., 2012) based on past case definitions. In a prior study, Jason, Brown, and colleagues (2012 ) compared patients recruited using the 1994 … Continue reading
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Tagged case definitions, diagnostic criteria, Leonard A Jason, Prof Julia Newton, sudden onset ME
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Defining ME/CFS: McGrath comments on Brown/Jason research
Simon McGrath at Phoenix rising comments on the full text (not available free) of Brown and Jason’s paper Validating a measure of myalgic encephalomyelitis/chronic fatigue syndrome symptomatology Extract from : Validating a measure of ME/CFS symptomatology – Brown & Jason … Continue reading
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Tagged Abigail A Brown, case definitions, Leonard A Jason, Simon McGrath
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Prof Leonard Jason videos
Professor Lenny Jason, from DePaul University, Chicago, talks about his involvement with ME and some huge prevalence studies in videos posted on the Dutch Youtube site ME/cvs Vereniging. More will be added over the coming weeks.
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Tagged Leonard A Jason, ME/cvs Vereniging, videos
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DSQ is valid tool for assessing symptoms in ME/CFS
Abstract Background: The diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is complex and largely based on self-reported symptom profiles. The field lacks consensus for a singular case definition and heterogeneous samples make comparability across studies difficult. Purpose: The present study … Continue reading
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Tagged Abigail A Brown, assessment of symptoms, DePaul Symptom Questionnaire, DSQ, Leonard A Jason, self-report measure
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Do coping strategies improve health in CFS?
Abstract OBJECTIVE/Hypothesis The objective of this study was to examine sub-types of individuals with chronic fatigue syndrome based on variables that are associated with the energy envelope theory and to examine the role of coping strategies in explaining the differences … Continue reading
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Tagged AA Brown, coping, energy envelope theory, energy management, Leonard A Jason, MA Evans, pacing
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