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Tag Archives: ME Action
Men & their battle with ME/CFS: online support group, 16 June 2018
ME Action blog post: Living w/ ME Support Group: Men & Their Battle with ME/CFS Join us for our live Support Group (via telephone or computer) this Saturday 16th June at 1 pm EST – (6pm UK time). Topic of the … Continue reading
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Tagged ME Action, online peer support
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Dutch report on CFS downgrades CBT & GET, calls for more research
The Dutch Health Council report to their Parliament in the Hague on CFS, 19 March 2018. Report in Dutch Summary in Dutch Background Google translation of Report into English Google translation of Summary into English Google translation of Background into English The Report’s conclusions and … Continue reading
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Tagged Cort Johnson, David Tuller, Dutch report, ME Action, Netherlands
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Ask your MP to sign EDM (271) NICE Guideline on ME
ME Action blog post, 9 September 2017: Ask your MP to sign our EDM BACKGROUND The National Institute for Health and Care Excellence (NICE) are currently deciding whether to change their guidelines on ME. It is a pivotal moment … Continue reading
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Tagged Early Day Motion, EDM, ME Action, NICE guidelines, Stephen Timms MP
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ME charity responses to NICE consultation
Here are links to charities’ responses to the 4 questions on NICE’s proposal not to review the Guidelines for CFS/ME 25% ME Group Action for ME Forward ME Hope 4 ME & Fibro Northern Ireland Invest in ME Local … Continue reading
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Tagged Action for ME, Adam Lowe, Forward ME Group, Hope 4 ME & Fibro Northern Ireland, Invest in ME, ME Action, ME Association, NICE, Sir Andrew Dillon, Stonebird, Tymes Trust
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#MEAction plans virtual concert for May 6th 2017: submit your art
MEAction plans virtual concert for May 6th: Submit your Art Whether you are a musician, poet or puppeteer, expressing yourself through a body devastated by Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) is suddenly an impossible feat – and … Continue reading
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Tagged #Bedfest, #MillionsMissing, Kaeley Pruitt-Hamm, ME Action, virtual concert
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Prof Komaroff’s webinar looks at major areas of ME research
ME Action blog post, by Darla N, 12 November: Dr. Komaroff’s webinar provides hypothesis, hot research and hope Link to webinar In a webinar the Solve ME/CFS Initiative hosted on Nov. 10, Dr. Anthony Komaroff presented his hypothesis on ME’s … Continue reading
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Tagged biomedical research, ME Action, Prof Anthony Komaroff, Solve ME/CFS Initiative
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FITNET & PACE in the media continue to incite controversy
BBC Radio Scotland: The Kaye Adams show on 7 November 2016 included an hour long discussion of ME and the PACE trial. Available to listen to until 6 December. Speakers were an American writer Julie Rehmeyer, and the ME Association’s medical adviser Dr … Continue reading
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Tagged BBC Radio 4, BBC Radio Bristol, Bristol University, CBT, cognitive behavioural therapy, David Tuller, Dr Bruce Levin, Dr Charles Shepherd, Dr Esther Crawley, Dr Phil Hammond show, FITNET, GET, graded exercise therapy, Julie Rehmeyer, Kaye Adams show, MAGENTA trial, Margaret Williams, ME Action, New Scientist, PACE trial
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PACE trial results were grossly exaggerated
Occupy ME blog post, by Jennie Spotila, 21 Sep 2016: PACE: Grossly Exaggerated On September 9, 2016, Queen Mary University of London released data from the PACE trial in compliance with a First Tier Tribunal decision on a Freedom of … Continue reading
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Tagged Alem Matthees, David Tuller, Jennie Spotila, Julie Rehmeyer, ME Action, PACE trial, Prof Simon Wessely, Queen Mary University of London
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UK and global petitions to stop GET trials for ME/CFS
The ME Action network has launched a campaign to stop trials into Graded Exercise Therapy (GET): stopget.org UK citizens can sign a petition against all trials for GET on the UK government website: Suspend all trials of graded exercise therapy in children … Continue reading
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Tagged e-petition, GET, graded exercise therapy, MAGENTA trial, ME Action, PACE trial
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