Tag Archives: ME Association

NICE Statement about graded exercise therapy in the context of COVID-19

Statement about graded exercise therapy in the context of COVID-19   NICE is aware of concerns about graded exercise therapy (GET) for people who are recovering from COVID-19. NICE’s guideline on ME/CFS (CG53) was published in 2007, many years before … Continue reading

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Post Covid-19 rehabilitation & PVFS

Physios4ME blog post: Post Covid-19 Rehabilitation, May 2020   During this national crisis many physiotherapists have been redeployed to front-line services, but as time goes on our attention will shift to the rehabilitation of survivors. COVID-19 is a new virus … Continue reading

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MEA offers free leaflets on ME, employment & education

ME Association blog post: ME Awareness Week Focus on Employment and Education – Free leaflets for you to download! Topics covered: Employment Issues and M.E. University and M.E. M.E. Children and Young People Examinations and M.E. Factsheet – What you … Continue reading

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PACE Trial reanalysis in the news – Findings of £5m ME chronic fatigue study ‘worthless’

Times article, by Tom Whipple, Science Editor, 22 March 2018: Findings of £5m ME chronic fatigue study ‘worthless’ [register for free to read 2 articles a week] Scientists have questioned the robustness of a study that recommended exercise and cognitive behavioural therapy … Continue reading

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Pernicious Anaemia: symptoms, diagnosis, Vitamin B12, ME/CFS & the NICE guideline review

ME Association blog post, 16 February 2018: Pernicious Anaemia: symptoms, diagnosis, Vitamin B12, ME/CFS and the NICE guideline review Article extract: What is pernicious anaemia? Pernicious anaemia (PA) is the most common cause of B12 deficiency in the UK. It … Continue reading

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NICE stakeholder workshop reports

NICE CG53 Stakeholder engagement meeting This week NICE held an introductory stakeholder meeting in London. There were limited places at the meeting and WAMES’ request to join the meeting by video conference was not successful. Future meetings will require a trip to London. NICE … Continue reading

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UK CFS/ME Research Collaborative conference in Bristol: 13, 14 Sep 2017

UK CFS/ME Research Collaborative conference Experts in neurovirology and orthostatic intolerance will take the lead for the fourth annual UK CFS/ME Research Collaborative (CMRC) conference, which will this year be held in Bristol on Wednesday 13 and Thursday 14 September. This … Continue reading

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ME charity responses to NICE consultation

Here are links to charities’ responses to the 4 questions on NICE’s proposal not to review the Guidelines for CFS/ME   25% ME Group Action for ME Forward ME Hope 4 ME & Fibro Northern Ireland Invest in ME Local … Continue reading

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MEA research grant to Dr Keith Geraghty to examine two controversial ME/CFS treatments recommended by NICE

ME Association blog post, 13 July 2017: ME Association provide new research grant to Dr Keith Geraghty to examine two controversial ME/CFS treatments recommended by NICE ME Association trustees have approved a new research grant that will critically examine the … Continue reading

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NICE proposes no change to CFS/ME guideline! WAMES will object!

As a stakeholder in the NICE CFS/ME guideline working group WAMES has received the following letter from NICE: 10/07/2017 Level 1A, City Tower Piccadilly Plaza Manchester M1 4BT Tel: 0300 323 0140     Fax: 0845 003 7784     www.nice.org.uk Dear Colleague RE: NICE … Continue reading

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