Tag Archives: ME Awareness

If you are living with ME – #YouAreNotAlone #MillionsMissing

Posted on 05/13/2021 by wames
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Blue Sunday Tea Party 16 May 2021 – raise awareness & funds

Posted on 05/13/2021 by wames

Blue Sunday 2021 – the Tea Party for ME Anna Redshaw began her Blue Sunday Tea Party 9 years ago. The idea caught on and on Sunday 16th May 2021, people from all over the world will meet up online … Continue reading →

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ME Awareness raising in Wales 2021

Posted on 05/03/2021 by wames

ME Awareness in Wales 2021   Awareness raising can happen at any time, by anyone, but traditionally the ME community individually and in groups have focussed efforts around 2 dates in the year: International ME Awareness Day – 12 May … Continue reading →

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Poem: Words escape

Posted on 05/15/2020 by wames

ME Awareness week:       Words escape, a poem by Derryan Paul               ME affects the brain. Words escape. A sentence on a page is meaningless, and yet, you know there is a meaning somewhere … Continue reading →

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Gwyneth’s ME story part 2 – my route to recovery

Posted on 05/14/2020 by wames

ME Awareness week:       Gwyneth’s ME story part 2 – the route to recovery   Gwyneth Hopkins is one of a small percentage of people who has recovered from ME within 5 years. Here is part 2 of her story. … Continue reading →

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‘Staying at home’ with ME – Sarah’s story

Posted on 05/13/2020 by wames

ME Awareness week: ‘Staying at home’ with ME – Sarah’s story   Having had ME for 27 years I’m not expecting to get better. Every day requires time spent lying down, experiencing pain in my muscles and joints and sensitivity … Continue reading →

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No Lockdown fun for Melanie, just bedbound with ME

Posted on 05/13/2020 by wames

ME Awareness Week: No Lockdown fun for Melanie, just bedbound with ME   My daughter has had ME for the last 27 years, since she was 11 years old when she suffered a bad attack of glandular fever. She was … Continue reading →

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‘Paused together’ or ‘left behind’ – Frances’ thoughts on Covid-19 & ME

Posted on 05/11/2020 by wames

ME Awareness week: ‘Paused together’ in Lockdown or Housebound with ME & ‘left behind’ – Frances’ thoughts on Covid-19 and ME   On having ME – Myalgic Encephalomyelitis Going from being active, well, independent and having a future with good … Continue reading →

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Video: I got a virus, I didn’t die, but I never recovered

Posted on 05/11/2020 by wames

ME Awareness Week:       I got a virus, I didn’t die, but I never recovered     #MEAction network video, May 2020 A short film by people with ME and experts, warning of the long term consequences that viruses can … Continue reading →

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Covid-19 or ME crash? – Kay’s story

Posted on 05/11/2020 by wames

ME Awareness Week:           Covid-19 or ME crash? – Kay’s story   ME and me, before C-19 I was first diagnosed with ME/CFS when I was in my teens, so I have lived with it for 25 years plus, with varying … Continue reading →

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