Tag Archives: MEGA
UK MEGA project update on funding applications & patient advisory group
MEGA research blog post, by Sonya Chowdhury, 29 March 2017: Our latest funding application and Patient Advisory Group update An update from the Scientific Team and Patient Advisory Group. First the bad news: unfortunately our preliminary application to Wellcome, submitted … Continue reading
TYMES trust publishes their concerns about MEGA study
MEGA statement from Tymes Trust: a study too far , 13 November 2016 Let us establish at the start, that Tymes Trust does not endorse or support MEGA. Fatigue is not ME, and ME is not fatigue. What disease does … Continue reading
Prof Perry supports MEGA study as key route to understanding complex diseases
Change.org MEGA study petition update, 26 October 2016: Prof Perry: “Genome Wide Association Studies (GWAS) are key route to understanding complex diseases” Prof Perry says, “genome Wide Associated Studies (GWAS) studies are a key route to understanding complex diseases and … Continue reading
Prof Jonathan Edwards comments on MEGA Big study oppostition
Opposing MEGA blog comment by Professor Jonathan Edwards about OMEGA Petition, 20 October 2016 Jonathan Edwards, Emeritus Professor of Connective Tissue Medicine, commented on a Discussion – Petition: Opposing MEGA I was very concerned that a counter petition of this sort would be an own goal. However, … Continue reading
Prof Holgate on why a broad definition should be used as a starting point in MEGA study
MEGA petition update, by Prof Stephen Holgate, 14 October 2016: Why broad definition should be used as a starting point Several of the patient/public concerns seem to relate to the worry that firstly severe disease will not be included or that … Continue reading
MEGA ‘big data’ study Q&A
Change.org petition update: MEGA Questions and Answers, by M.E./CFS Epidemiology and Genomics Alliance (MEGA), 5 October 2016 Many of you have asked us questions about MEGA. We have not yet applied for funding and the patient advisory groups have not … Continue reading
MEGA research for M.E./CFS: pledge your support
Action for ME blog post, 28 Sep 2016: MEGA research for M.E./CFS: pledge your support Please add your voice to support a significant biomedical research project to investigate the biology of M.E. Launched at the UK CFS/M.E. Research Collaborative conference, the M.E./CFS Epidemiology … Continue reading
MEGA: new UK research alliance announces ‘big data’ study
MEGA: ME/CFS Epidemiology and Genomics Alliance: On the 13th and 14th of April 2016, experts from multiple fields came together for a ‘grand challenge’ workshop to discuss how to advance research in understanding CFS/ME. It was agreed that: Very large … Continue reading