Tag Archives: NICE guidelines

CFS treatment ‘should be withdrawn’

BBC newsbeat report, 8 May 2019: Chronic fatigue syndrome treatment ‘should be withdrawn’ A common treatment for chronic fatigue syndrome should be scrapped immediately, according to one of the UK’s leading experts in the illness. Dr Charles Shepherd says graded … Continue reading

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Forward-ME Group meeting minutes 7 Feb 2018

Forward ME Group minutes Forward-ME consists of charities and voluntary organisations invited by the Countess of Mar to meet from time to time. The Aim of Forward-ME is to promote effective joint working by ME and CFS organisations to maximise impact … Continue reading

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1,000 signatures in 12 hours! e-petition to remove GET & CBT from NICE guidance immediately

Change.org petition, started by Robin Brown, 23 Feb 2017: Stop harming ME/CFS patients – take CBT/GET out of NICE guidelines NOW Robin Brown started this petition to Director, Centre for Guidelines, NICE & director Prof. Mark Baker NICE has promised to … Continue reading

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NICE announces next steps in updating its guideline on ME/CFS

NICE blog post, 15 Feb 2018: NICE announces next steps in updating its guideline on ME/CFS A workshop last month with stakeholders marked the formal start of NICE’s collaborative work to update its 2010 guideline on the diagnosis and management … Continue reading

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CBT & GET – an offer you can’t refuse

mrspoonseeker blog post, 28 January 2018: An offer you can’t refuse In the previous post about the NICE Guidelines revision, it was reported that Prof Mark Baker of NICE had raised the issue of the right of patients to refuse … Continue reading

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The NICE guidelines – starting again?

mrspoonseeker blog post, 21 Jan 2018: The NICE Guidelines – Starting Again? N.B. Please sign the NICE Guidelines Committee petition – see below. There was some encouraging feedback from the recent NICE ME/CFS Guidelines Stakeholder meeting, an early milestone in the long … Continue reading

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Guidelines, not tramlines – NICE guidance is not mandatory

NICE director’s blog post, by Mark Baker, 15 Sep 2017:  Guidelines, not tramlines   Professor Mark Baker, director of the centre of guidelines at NICE Mark sets the record straight A recent headline in the Times said ‘Doctors must send obese … Continue reading

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NICE CFS/ME guideline to be updated!

NICE announcement, 201 September 2017: Surveillance report 2017 – Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): diagnosis and management (2007) NICE guideline CG53 We will plan a full update with a modified scope of the guideline on chronic fatigue syndrome/myalgic encephalomyelitis (or … Continue reading

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Trial By Error: The NICE “Topic Expert” Reports (FOI)

Virology blog post, by David Tuller, 11 September 2017: Trial By Error: The NICE “Topic Expert” Reports Freedom of Information requests to NICE My first recent freedom of information request to the National Institute for Health and Care Excellence (NICE) … Continue reading

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Ask your MP to sign EDM (271) NICE Guideline on ME

ME Action blog post, 9 September 2017: Ask your MP to sign our EDM BACKGROUND The National Institute for Health and Care Excellence (NICE) are currently deciding whether to change their guidelines on ME. It is a pivotal moment for … Continue reading

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