Tag Archives: NICE guidelines

Prof Brian Hughes: 2021 NICE guideline myths

Posted on 06/01/2023 by wames

Getting it Right: Addressing myths about the 2021 NICE guideline for ME/CFS   Brian Hughes is an academic psychologist and university professor in Galway, Ireland with a blog called the Science bit. On World ME Day 2023 he spoke to … Continue reading →

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NICE guideline work postponed

Posted on 03/30/2020 by wames

NICE – National Institute for Health and Care Excellence letter, 27 March 2020   Dear Stakeholder, We wanted to update you on how NICE is working to support the NHS and wider health and care sector at this challenging time, … Continue reading →

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CFS treatment ‘should be withdrawn’

Posted on 05/11/2018 by wames

BBC newsbeat report, 8 May 2019: Chronic fatigue syndrome treatment ‘should be withdrawn’ A common treatment for chronic fatigue syndrome should be scrapped immediately, according to one of the UK’s leading experts in the illness. Dr Charles Shepherd says graded … Continue reading →

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Forward-ME Group meeting minutes 7 Feb 2018

Posted on 03/09/2018 by wames

Forward ME Group minutes Forward-ME consists of charities and voluntary organisations invited by the Countess of Mar to meet from time to time. The Aim of Forward-ME is to promote effective joint working by ME and CFS organisations to maximise impact … Continue reading →

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1,000 signatures in 12 hours! e-petition to remove GET & CBT from NICE guidance immediately

Posted on 02/23/2018 by wames

Change.org petition, started by Robin Brown, 23 Feb 2017: Stop harming ME/CFS patients – take CBT/GET out of NICE guidelines NOW Robin Brown started this petition to Director, Centre for Guidelines, NICE & director Prof. Mark Baker NICE has promised to … Continue reading →

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NICE announces next steps in updating its guideline on ME/CFS

Posted on 02/16/2018 by wames

NICE blog post, 15 Feb 2018: NICE announces next steps in updating its guideline on ME/CFS A workshop last month with stakeholders marked the formal start of NICE’s collaborative work to update its 2010 guideline on the diagnosis and management … Continue reading →

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CBT & GET – an offer you can’t refuse

Posted on 01/30/2018 by wames

mrspoonseeker blog post, 28 January 2018: An offer you can’t refuse In the previous post about the NICE Guidelines revision, it was reported that Prof Mark Baker of NICE had raised the issue of the right of patients to refuse … Continue reading →

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The NICE guidelines – starting again?

Posted on 01/24/2018 by wames

mrspoonseeker blog post, 21 Jan 2018: The NICE Guidelines – Starting Again? N.B. Please sign the NICE Guidelines Committee petition – see below. There was some encouraging feedback from the recent NICE ME/CFS Guidelines Stakeholder meeting, an early milestone in the long … Continue reading →

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Guidelines, not tramlines – NICE guidance is not mandatory

Posted on 09/21/2017 by wames

NICE director’s blog post, by Mark Baker, 15 Sep 2017:  Guidelines, not tramlines   Professor Mark Baker, director of the centre of guidelines at NICE Mark sets the record straight A recent headline in the Times said ‘Doctors must send obese … Continue reading →

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NICE CFS/ME guideline to be updated!

Posted on 09/20/2017 by wames

NICE announcement, 201 September 2017: Surveillance report 2017 – Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): diagnosis and management (2007) NICE guideline CG53 We will plan a full update with a modified scope of the guideline on chronic fatigue syndrome/myalgic encephalomyelitis (or … Continue reading →

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