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House of Lords Q&A: NICE & ME/CFS
The House of Lords, Tuesday 12 October 2021 Oral questions: Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome Lord Kamall, the Parliamentary Under-Secretary of State, Department of Health and … Continue reading
NICE ME/CFS Guideline to be published April 2021
NICE ME/CFS Guideline to be published April 2021 WAMES has received notification from NICE about the dates the stakeholder meetings will reconvene, and the proposed publication date of the revised ME/CFS clinical guideline. 24/6/20 Dear Stakeholder, As you … Continue reading
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Tagged clinical guidelines, National Institute for Health and Care Excellence, NICE
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Survey of severe ME – help inform the NICE guidelines
Survey of severe ME Dr Keith Geraghty & Manchester University are conducting a study to better understand the needs and views of patients with severe ME/CFS. This project has been commissioned by the National Institute of Health and Care Excellence (NICE) … Continue reading
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Tagged Dr Keith Geraghty, National Institute for Health and Care Excellence, NICE, severe ME, survey
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NICE stakeholder workshop reports
NICE CG53 Stakeholder engagement meeting This week NICE held an introductory stakeholder meeting in London. There were limited places at the meeting and WAMES’ request to join the meeting by video conference was not successful. Future meetings will require a trip to London. NICE … Continue reading
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Tagged ME Association, ME Research UK, NICE, Sally Burchall, stakeholder events
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Trial by Error: NICE Declines to Disclose Names of Experts
Virology blog post, by Dr David Tuller, 24 July 2017: Trial by Error: NICE Declines to Disclose Names of Experts The Countess of Mar, a well-known advocate for ME/CFS patients in the House of Lords, has received a negative response … Continue reading
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Tagged David Tuller, Department of Health, NICE
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ME charity responses to NICE consultation
Here are links to charities’ responses to the 4 questions on NICE’s proposal not to review the Guidelines for CFS/ME 25% ME Group Action for ME Forward ME Hope 4 ME & Fibro Northern Ireland Invest in ME Local … Continue reading
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Tagged Action for ME, Adam Lowe, Forward ME Group, Hope 4 ME & Fibro Northern Ireland, Invest in ME, ME Action, ME Association, NICE, Sir Andrew Dillon, Stonebird, Tymes Trust
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Countess of Mar asks UK Parliament about NICE & ME/CFS
The Countess of Mar asked written questions to the UK Parliament on the topic of NICE and ME/CFS. HL637: 10 July 2017 Q. Her Majesty’s Government who were the experts the National Institute for Health and Clinical Excellence consulted in their recent … Continue reading
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Tagged Countess of Mar, Lord O'Shaughnessy, NICE, UK parliament
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MEA research grant to Dr Keith Geraghty to examine two controversial ME/CFS treatments recommended by NICE
ME Association blog post, 13 July 2017: ME Association provide new research grant to Dr Keith Geraghty to examine two controversial ME/CFS treatments recommended by NICE ME Association trustees have approved a new research grant that will critically examine the … Continue reading
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Tagged CBT, cognitive behavioural therapy, Dr Keith Geraghty, GET, graded exercise therapy, ME Association, NICE
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NICE takes a dim view of foreign work on ME/CFS
ME Association news blog post, 24 October 2016: NICE takes a dim view of foreign work on ME/CFS – Robin Ellis Freedom of Information request The main supplier of England’s drugs and treatment guidelines, the National Institute for Health and Clinical … Continue reading
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Tagged Countess of Mar, FOI, Freedom of Information request, Institute of Medicine, National Institute for Health and Care Excellence, NICE, Prof Mark Baker, Robin Ellis
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