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Tag Archives: PACE
Rethinking the standard of care for ME/CFS
Rethinking the standard of care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Fred Friedberg, Madison Sunnquist, Luis Nacul in Journal of General Internal Medicine, Published online: 21 October 2019 [doi.org/10.1007/s11606-019-05375-y ] Article abstract: For over two decades, the standard of … Continue reading
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Tagged CBT, clinical management, cognitive behavioural therapy, Dr Fred Friedberg, Dr Luis Nacul, energy envelope theory, GET, graded exercise therapy, Madison L Sunnquist, PACE, pacing, Post-exertional malaise
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David Tuller’s work on PACE & update on funding appeal
TWiV Special, 31 May 2017: Trial by Error, Continued Here’s a 50-minute podcast by David Tuller who is interviewed by Prof Vincent Racaniello: David Tuller returns to discuss the continuing saga of the UK’s PACE trial for chronic fatigue syndrome, … Continue reading
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Tagged David Tuller, Erica Verillo, IiME, Invest in ME, PACE, Prof Vincent Racaniello
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Tuller says FITNET fraught with misrepresentations & methodological problems
Virology blog post, by David Tuller, 21 November 2016: Trial By Error, Continued: The New FITNET Trial for Kids The article challenges: the failure of PACE researchers to acknowledge failings of PACE the unproven use of CBT to reverse false … Continue reading
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Tagged CBT, children, cognitive behavioural therapy, David Tuller, Dr Esther Crawley, FITNET, PACE, Virology blog
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Studies on CBT & GET for ME/CFS are misleading, says Swedish prof
Article abstract: There have been a number of studies on Cognitive Behavioral Therapy (CBT) and Graded Exercise Therapy (GET) for ME/CFS based on a treatment model where the disease is perpetuated by cognitive processes. Although the studies are flawed and … Continue reading
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Tagged biopsychosocial model, CBT, cognitive behavioural therapy, GET, graded exercise therapy, PACE, PACE trial, Prof Sten Helmfrid
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FITNET trial reporting is misleading
Major charities and individuals have joined WAMES in expressing concern about the nature of the FITNET trial being run by Prof Esther Crawley, the lack of objective analysis in the media coverage and the questionable results from the original Dutch trial. WAMES does … Continue reading
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Tagged Action for ME, activity management, biopsychosocial model, CBT, cognitive behavioural therapy, Dr Esther Crawley, FITNET, GET, ME Association, PACE, Utting-Wolf spouts
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CBT: why is it so vilified in the CFS community?
Journal editorial by Dr Fred Freidberg, 7 July 2016: Cognitive-behavior therapy (CBT) is a well-established psychosocial intervention for psychiatric disorders, pain management, and stress related to medical conditions.[1] It has rarely provoked controversy, much less outright hostility. That is, until … Continue reading
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Tagged CBT, cognitive behavioural therapy, David Tuller, Dr Fred Friedberg, Lancet, PACE
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A review of PROMS for CFS/ME
Patient-Reported Outcome Measures (PROMS) are questionnaires that researchers and clinicians ask patients to complete to assess the value of a treatment. The limitation of these measures were highlighted in 2011 by critics of the PACE trial. Researchers from England have reviewed … Continue reading
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Tagged PACE, Patient-Reported Outcome Measures, PROMS, SF-36
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