Tag Archives: patient involvement

Factors affecting the characterization of Post-Exertional Malaise derived from patient input

Factors affecting the characterization of Post-Exertional Malaise derived from patient input by Carly S Holtzman, Claire Fisher, Shaun Bhatia, Leonard A Jason, in Journal of Health Disparities Research and Practice: Vol. 13 : Iss. 2 , Article 5. Research abstract: … Continue reading

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Hope, disappointment and perseverance: reflections of people with ME/CFS & MS participating in biomedical research

Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study, by Eliana M. Lacerda, Clare McDermott, Caroline C. Kingdon, Jack Butterworth, Jacqueline M Cliff, … Continue reading

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