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Tag Archives: PROMS
Research: Fitbit trackers & PROMs help monitor ME/CFS activity
Activity monitoring and patient-reported outcome measures in ME/CFS patients A small Norwegian study from the team led by Prof Olav Mella and Dr Oystein Fluge trialled wearable activity trackers and questionnaires to monitor heart rate and activity to aid pacing … Continue reading
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Tagged activity trackers, DePaul Symptom Questionnaire, Dr Oystein Fluge, DSQ-SF, Fitbit, heart rate monitoring, Ingrid G Rekeland, Kari Sorland, Karl J Tronstad, Kine Alme, Kristin Risa, Olav Dahl, Ove Bruland, Prof Olav Mella, PROMS, SF-36, Short form 36, wearable sensor
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Systematic review of Primary Outcome Measurements for CFS/ME in randomized controlled trials
Systematic review of primary Outcome Measurements for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (CFS/ME) in randomized controlled trials, by Do-Young Kim, Jin-Seok Lee and Chang-Gue Son in J. Clin. Med. 2020, 9(11) 3463 [doi.org/10.3390/jcm9113463] (This article belongs to the Special Issue Chronic … Continue reading
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Tagged Chang-Gue Son, Do-Young Kim, Jin-Seok Lee, Patient reported outcome measure, PROMS, Randomised Controlled Trials, RCT
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Bias caused by reliance on patient-reported outcome measures in non-blinded randomized trials
Bias caused by reliance on patient-reported outcome measures in non-blinded randomized trials: an in-depth look at exercise therapy for chronic fatigue syndrome by Michiel Tack, David M Tuller & Caroline Struthers in Fatigue: Biomedicine, Health & Behavior Vol 8, 2020 … Continue reading
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Tagged Caroline Struthers, GET, graded exercise therapy, Michiel Tack, Patient reported outcome measure, Prof David Tuller, PROMS, response bias
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How common are depression & anxiety in adolescents with CFS?
How common are depression and anxiety in adolescents with chronic fatigue syndrome (CFS) and how should we screen for these mental health co-morbidities? A clinical cohort study, by Maria E Loades, Rebecca Read, Lucie Smith, Nina T Higson-Sweeney, Amanda Laffan, … Continue reading
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Tagged adolescents, Amanda Laffan, anxiety, David Kessler, depression, Dr Esther Crawley, Lucie Smith, Maria E Loades, mental health, Nina T Higson-Sweeney, Patient reported outcome measure, Paul Stallard, PROMS, Rebecca Read, screening tools, teenagers
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Developing & pretesting a new patient reported outcome measure for paediatric CFS/ME
Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME): cognitive interviews with children, by Roxanne M. Parslow, Alison Shaw, Kirstie L Haywood, Esther Crawley in Journal of Patient-Reported Outcomes Vol 3, p 67 [First … Continue reading
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Tagged Alison Shaw, children, cognitive interviews, Dr Esther Crawley, Kirstie Haywood, paediatric CFS, Patient reported outcome measure, PROMS, Roxanne Morin Parslow, Three step test interview, TSTI
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CFS & Quality of Life
Chronic fatigue syndrome and quality of life, by Deb Roberts in Patient Related Outcome Measures Vol 2018, #9, pp 253-262 [Published August 1, 2018] Article abstract: Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), is a challenging long-term condition (LTC) with complex … Continue reading
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Tagged Deb Roberts, Patient-Reported Outcome Measures, PROMS, QoL, Quality of life, WHOQoL-Bref26
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Important factors to consider when treating children with CFS/ME
Research abstract: Background: Paediatric Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME) is relatively common and disabling. Improving treatment requires the development of Patient Reported Outcome Measures (PROMs) that enable clinicians and researchers to collect patient-centred evidence on outcomes. Health professionals are well placed to provide … Continue reading
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Tagged adolescents, Alison Shaw, children, Dr Esther Crawley, Kirstie Haywood, paediatric ME, Patient-Reported Outcome Measures, PROMS, Roxanne M Parslow, teenagers
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A better way to measure ME/CFS experience is needed
Research abstract: PURPOSE: Debilitating fatigue is a core symptom of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS); however, the utility of patient-reported symptom outcome measures of fatigue for ME/CFS patients is problematic due to ceiling effects and issues with reliability and validity. … Continue reading
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Tagged DePaul Symptom Questionnaire, Dr Suzanne Vernon, MFI scales, Multidimensional Fatigue Inventory, Patient-Reported Outcome Measures, PROMS, SF-36
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Measuring patient experience and success of services – can you help?
The Wales Neurological Alliance is looking for patients and carers to take part in focus groups across Wales to help Public Health Wales develop appropriate PROMs and PREMs across the NHS. What are PREMs and PROMs? PREMs – Patient reported … Continue reading
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Tagged Patient reported experience measures, Patient-Reported Outcome Measures, PREMS, PROMS, Wales neurological alliance, WNA
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