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Tag Archives: Queen Mary University of London
PACE trial results were grossly exaggerated
Occupy ME blog post, by Jennie Spotila, 21 Sep 2016: PACE: Grossly Exaggerated On September 9, 2016, Queen Mary University of London released data from the PACE trial in compliance with a First Tier Tribunal decision on a Freedom of … Continue reading
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Tagged Alem Matthees, David Tuller, Jennie Spotila, Julie Rehmeyer, ME Action, PACE trial, Prof Simon Wessely, Queen Mary University of London
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QMUL announces they will release the PACE data
ME Action blog post by Alex Anderssen, 9 September 2016: QMUL releases the PACE data Queen Mary University of London (QMUL) has released the PACE data to a patient who requested it under the Freedom of Information Act, as ordered by a … Continue reading
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Tagged Alem Matthees, Alex Anderssen, David Tuller, ME Action, PACE trial, QMUL, Queen Mary University of London, Tom Kindlon
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Dr Tuller’s questions for Lancet Editor Dr Horton on handling of PACE trial issues
Virology blog post, by David Tuller DrPH, 1 September 2016: Trial By Error, Continued: My Questions for Lancet Editor Richard Horton In January, I posted a list of the questions I still wanted to ask the PACE authors, who have … Continue reading
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Tagged data sharing, David Tuller, Dr Richard Horton, Lancet, PACE trial, QMUL, Queen Mary University of London, Virology blog
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Professor says tribunal was right to order release of PACE trial data
The Conversation blog post, by Prof Jo Edwards, 26 August 2016: Tribunal was right to order release of chronic fatigue trial data After nearly four months deliberation a tribunal has dismissed an appeal made by Queen Mary University of London (QMUL) … Continue reading
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Tagged Alem Matthees, data sharing, FOI, Freedom of Information request, PACE trial, Prof Jonathan Edwards, QMUL, Queen Mary University of London
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More PACE trial tribunal comments
PACE trial ruling: Respondent Alem Mathees main response The essential daily briefing, 19 August 2016: Chronic Fatigue Syndrome sufferers have just had a small victory Health Rising discussion, 17 August 2016: The PACE Trial’s Big Stumble: UK Tribunal Orders Release of PACE … Continue reading
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Tagged Alem Matthees, PACE trial, Prof James C Coyne, Queen Mary University of London
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Tribunal orders release of PACE data
ME Action blog post, by Alex Anderssen, 16 August 2016: Tribunal orders release of PACE data A tribunal panel has ordered Queen Mary University of London (QMUL) to release anonymised data from the PACE trial to Mr. Alem Matthees, a patient … Continue reading
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Tagged Alem Matthees, Freedom of Information request, Information Commissioner’s Office, PACE trial, Queen Mary University of London, Simon McGrath, Solve ME/CFS, Steven Lubet, Tom Kindlon, Trevor Butterworth, Valerie Eliot Smith
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The cost of fighting PACE trial data-sharing
johnthejack blog post, 29 June 29 2016: Using public money to keep publicly funded data from the public After publication of the PACE trial comparing different interventions (Cognitive Behavioural Therapy [CBT], Graded Exercise Therapy [GET], Adaptive Pacing Therapy and Specialist Medical Care) for … Continue reading
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Tagged Alem Matthees, data sharing, David Tuller, Freedom of Information request, johnthejack, PACE trial, Prof James C Coyne, QMUL, Queen Mary University of London, Rebeca Goldin, Valerie Eliot Smith
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PLOS One journal restates position on data sharing to Prof Coyne
In the standoff over release of the PACE PLOS One trial data, has the journal just blinked? by James Coyne, 7 April 2016 I just received (April 7, 2016) another communication from the Managing Editor of PLOS One reporting an … Continue reading
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Tagged data sharing, Information Commissioner’s Office, PACE trial, PLOS One, Prof James C Coyne, Prof Peter White, Queen Mary University of London
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WAMES writes in support of releasing PACE trial data
Today WAMES, joins the ME Association, Tymes Trust, 25% Group, Invest in ME and Hope for ME in calling for the release of PACE trial data so that an independent investigation can begin: To: Records and Information Compliance Manager, Queen … Continue reading
PACE Freedom of Information request to be appealed
On 26 November 2015, it became apparent that QMUL was appealing the decision of the ICO. (Information Commissioner’s Office) The appeal is to the First-Tier Tribunal (Information Rights). The complainant can choose whether or not to be joined as a … Continue reading
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Tagged Freedom of Information request, PACE trial, Queen Mary University of London
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