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Ensuring the voice of the very severely affected ME/CFS patient is heard in research
Ensuring the voice of the very severely affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patient is heard in research-a research model, by Helen Baxter Research article abstract: Most of the research about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has focused on ambulant … Continue reading
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Tagged Helen Baxter, ME Research UK, reasonable adjustments, research methods, very severe ME/CFS, Victoria Strassheim
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Lived experiences in daily life with ME (Denmark)
Lived experiences in daily life with myalgic encephalomyelitis, by Reeti KK Sandhu, Maj Sundby, Sidsel Ørneborg, Svetlana Solgaard Nielsen, Jeanette Reffstrup Christensen, Anette Enemark Larsen in British Journal of Occupational Therapy, November 2020 [doi.org/10.1177/0308022620966254] Research abstract: Introduction Myalgic encephalomyelitis … Continue reading
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Tagged Anette Enemark Larsen, home adaptations, Jeanette Reffstrup Christensen, Maj Sundby, Model of Human Occupation, MOHO, occupational identity, occupational therapy, pacing, PEM, Post-exertional malaise, reasonable adjustments, Reeti KK Sandhu, Sidsel Ørneborg, Svetlana Solgaard Nielsen
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NICE ME/CFS draft guideline: supporting people with ME/CFS in work, education & training
NICE ME/CFS draft guideline: supporting people with ME/CFS in work, education & training The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments … Continue reading
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Tagged children, disability employment, education, National Institute for Health and Care Excellence, NICE guideline ME/CFS, reasonable adjustments
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Environmental accommodations for university students affected by ME/CFS
Environmental accommodations for university students affected by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), by Lily Chu, Lynn R Fuentes, Olena M Marshall and Arthur A. Mirin in Work pp. 1-12, 2020[DOI: 10.3233/WOR-203176] Research abstract: Background: Today, 24% of college and … Continue reading
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Tagged Arthur A Mirin, Chronic illness, college student, disabled students, Dr Lily Chu, Lynn R Fuentes, occupational therapy, Olena M Marshall, OTs, reasonable adjustments, university
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ME awareness – in the workplace
Explaining ME in the workplace Raising awareness of ME is always a good idea – yes? But is telling others about your experience of ME always a good idea? There are many creative ways to describe to friends and family … Continue reading
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Tagged disability employment, ME Awareness, reasonable adjustments
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1 in 10 businesses unable to support a disability or health condition
Disability Rights UK blog post, 8 Aug 2016: 1 in 10 businesses unable to support an employee with a disability or health condition Increasing the number of disabled people in employment must be a “national priority” New research has found … Continue reading
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Tagged Disability Rights UK, employment, reasonable adjustments
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Guidance on ME for welfare tribunals
ME is listed in the Equal Treatment Bench Book which contains guidance on Equality & Diversity issues for the judiciary, this includes Tribunal Chairs. It may be useful for people with ME to highlight this information with the members of … Continue reading
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Tagged disability, Equal Treatment Bench Book, Equality Act, reasonable adjustments, tribunals
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Disability entitlements for hearings and appeals
ME is listed in the Equal Treatment Bench Book which contains guidance on Equality & Diversity issues for the judiciary, this includes Tribunal Chairs. Unfortunately the judiciary are often unaware of the Equal Treatment Bench Book and need to have … Continue reading
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Tagged Access to work, Benefits appeals, Benefits hearings, disability, Equal Treatment Bench Book, reasonable adjustments
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‘Reasonable adjustments’ for disabled pupils in schools
The Equality and Human Rights Commission have published guides to the implementation of ‘reasonable adjustments’ in schools. The duty was first introduced under the Disability Discrimination Act 1995. The reasonable adjustments duty under the Equality Act operates slightly differently and … Continue reading
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Tagged DDA, disability, Disability Discrimination Act, education, EHRC, Equality Act, Equality and Human Rights Commission, pupils, reasonable adjustments, schools, students, teachers
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