Tag Archives: research

Understanding ME & CFS symptoms in children – take part in research project!

Symptomatology of pediatric ME & CFS – research project The Center for Community Research at DePaul University in the USA, led by Prof Leonard Jason says: There is currently little research on children with myalgic encephalomyelitis (ME) and chronic fatigue … Continue reading

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Families sought for trial of classroom robot as avatar for child with ME

Invest in ME Research newsletter, November 2017: Removing isolation from young people with ME IiMER invites families that: have a child who has been forced to stay at home due to ME, and who would like to participate in a trial … Continue reading

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Depression-like symptoms in ME research – invitation to participate

Prof Leonard Jason writes on Facebook, 14 October 2016: Our recent paper “Mortality in patients with ME and CFS” found patients are significantly at risk for earlier all-cause mortality with the top three causes of death being suicide, cardiovascular problems, and … Continue reading

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A tool for making sense of health studies

Understanding Health Research: a tool for making sense of health studies Can I trust the findings of health research? This online tool aims to guide you through a series of questions to help you review health research. The website also contains introductions to … Continue reading

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Doing research in ME/CFS with ME/CFS

Article introduction: My name is Dr. Keith Geraghty, I am an Honorary Research Fellow at the University of Manchester in the Centre for Primary Care. My main research interests are patient safety and harms, doctor-patient relations, medically unexplained illness and ME/CFS … Continue reading

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MEGA: new UK research alliance announces ‘big data’ study

MEGA: ME/CFS Epidemiology and Genomics Alliance: On the 13th and 14th of April 2016, experts from multiple fields came together for a ‘grand challenge’ workshop to discuss how to advance research in understanding CFS/ME. It was agreed that: Very large … Continue reading

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US NIH plans in-depth ME/CFS study

Simon McGrath reports on: the most in-depth, comprehensive and innovative ME/CFS studies ever proposed: it’s the first fruit of Director Dr Francis Collins’s ‘new start’ for ME/CFS at the US National Institutes of Health (NIH). Dr Nath, who is Chief … Continue reading

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Co-production in research into neurological conditions – conference April 14 2016 Cardiff

Organised by the Wales Neurological Alliance, this conference will explore the benefits of a co-productive approach for researchers and participants in the context of the current research environment in Wales. Co-production in research into neurological conditions Thu, Apr 14 at … Continue reading

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CMRC UK CFS/ME Research Collaborative conference report

The UK CFS/ME Research Collaborative conference report for 13-14 October 2015 is now available for download. The report features an overview of 21 presentations and five workshops, plus feedback from conference delegates: CONTENTS 5   Welcome       Prof Stephen Holgate, UK CFS/ME … Continue reading

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Healthwise Wales study

HealthWise Wales is a Welsh Government initiative to involve everyone in Wales in improving the health and wellbeing of the population, by taking part in research. They are asking you to: Help them to work out the most important questions on … Continue reading

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