Tag Archives: research

OMF StudyME – register of willing research participants

Posted on 05/03/2023 by wames

StudyME – research participant registry   The Open Medicine Foundation (OMF) in the US invites you to help speed up the research process! StudyME is a participant registry which will connect those who want to participate in research studies (wherever you … Continue reading →

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The Chronic Illness Survey Adventure – an international study of symptoms

Posted on 05/18/2021 by wames

The Chronic Illness Survey Adventure What is it?  An international survey-based study to probe more deeply into ME/CFS, long COVID, POTS, hEDS and MCAS – ‘Symptom Cluster Characterization in Complex Chronic Disease’. Who is behind it? It is a partnership … Continue reading →

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Systematic review of randomized controlled trials for CFS/ME

Posted on 01/29/2020 by wames

Systematic review of randomized controlled trials for chronic fatigue syndrome/ myalgic encephalomyelitis (CFS/ME), by Do-Young Kim, Jin-Seok Lee, Samuel-Young Park, Soo-Jin Kim & Chang-Gue Son in Journal of Translational Medicine vol 18, no. 7 (2020)   Research abstract: Background: Although … Continue reading →

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Understanding ME & CFS symptoms in children – take part in research project!

Posted on 11/09/2018 by wames

Symptomatology of pediatric ME & CFS – research project The Center for Community Research at DePaul University in the USA, led by Prof Leonard Jason says: There is currently little research on children with myalgic encephalomyelitis (ME) and chronic fatigue … Continue reading →

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Families sought for trial of classroom robot as avatar for child with ME

Posted on 11/17/2017 by wames

Invest in ME Research newsletter, November 2017: Removing isolation from young people with ME IiMER invites families that: have a child who has been forced to stay at home due to ME, and who would like to participate in a trial … Continue reading →

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Depression-like symptoms in ME research – invitation to participate

Posted on 10/18/2016 by wames

Prof Leonard Jason writes on Facebook, 14 October 2016: Our recent paper “Mortality in patients with ME and CFS” found patients are significantly at risk for earlier all-cause mortality with the top three causes of death being suicide, cardiovascular problems, and … Continue reading →

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A tool for making sense of health studies

Posted on 09/26/2016 by wames

Understanding Health Research: a tool for making sense of health studies Can I trust the findings of health research? This online tool aims to guide you through a series of questions to help you review health research. The website also contains introductions to … Continue reading →

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Doing research in ME/CFS with ME/CFS

Posted on 06/02/2016 by wames

Article introduction: My name is Dr. Keith Geraghty, I am an Honorary Research Fellow at the University of Manchester in the Centre for Primary Care. My main research interests are patient safety and harms, doctor-patient relations, medically unexplained illness and ME/CFS … Continue reading →

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MEGA: new UK research alliance announces ‘big data’ study

Posted on 05/18/2016 by wames

MEGA: ME/CFS Epidemiology and Genomics Alliance: On the 13th and 14th of April 2016, experts from multiple fields came together for a ‘grand challenge’ workshop to discuss how to advance research in understanding CFS/ME. It was agreed that: Very large … Continue reading →

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US NIH plans in-depth ME/CFS study

Posted on 03/04/2016 by wames

Simon McGrath reports on: the most in-depth, comprehensive and innovative ME/CFS studies ever proposed: it’s the first fruit of Director Dr Francis Collins’s ‘new start’ for ME/CFS at the US National Institutes of Health (NIH). Dr Nath, who is Chief … Continue reading →

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