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Co-production in research into neurological conditions – conference April 14 2016 Cardiff
Organised by the Wales Neurological Alliance, this conference will explore the benefits of a co-productive approach for researchers and participants in the context of the current research environment in Wales. Co-production in research into neurological conditions Thu, Apr 14 at … Continue reading
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Tagged Cardiff, conference, research, Wales neurological alliance
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CMRC UK CFS/ME Research Collaborative conference report
The UK CFS/ME Research Collaborative conference report for 13-14 October 2015 is now available for download. The report features an overview of 21 presentations and five workshops, plus feedback from conference delegates: CONTENTS 5 Welcome Prof Stephen Holgate, UK CFS/ME … Continue reading
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Tagged research, UK CFS/ME Research Collaborative, UK CMRC
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Healthwise Wales study
HealthWise Wales is a Welsh Government initiative to involve everyone in Wales in improving the health and wellbeing of the population, by taking part in research. They are asking you to: Help them to work out the most important questions on … Continue reading
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Tagged BBC news, Healthwise Wales, research, Welsh Government
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The chokehold behavioural treatments have on ME/CFS
American health blogger Cort Johnson looks at which ME/CFS treatment studies have been published since the start of 2013. He highlights that there has been a lack of drug studies and that most of the these studies were small. Extracts: “With … Continue reading
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Tagged CBT, cognitive behavioural therapy, Cort Johnson, GET, graded exercise therapy, research
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250 donations to ‘Solve ME/CFS’ needed by 1 Dec 2015
Giving Tuesday: Help Solve ME/CFS initiative to meet their challenge and receive $50,000 by making a Giving Tuesday donation. An anonymous donor has put up a $50,000 challenge donation that they will receive, if they get 250 gifts of any amount by Tuesday 1 … Continue reading
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Tagged fundraising, Giving Tuesday, research, Solve ME/CFS Initiative
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Invitation to take part in a large gene study of ME/CFS
Are you currently diagnosed with ME/CFS (SEID)? Are you interested in your genetic makeup? If so, help the INIM create a one of a kind genetic database for patients with ME/CFS. Participation for this study requires you to have a … Continue reading
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Tagged Dr Nancy Klimas, genes, genetic database, INIM, Institute for Neuro Immune Medicine, research
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Mendus: patient driven research projects
Mendus is an online research lab where patients can take part in research trials and even suggest topics for study. The aim of Mendus is to bring research within reach of those who need it. patients can unite, discuss, and … Continue reading
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Tagged chocolate, D-ribose, De Paul Symptom Questionnaire, diet, Dr Leonard Jason, Joshua Grant, Mendus, research, whey protein
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NIH report: advancing ME/CFS research
ME Research UK comment, 17 June 2015: The prestigious US scientific journal Annals of Internal Medicine has just published a position paper – Advancing the research on ME/CFS – which summarizes the conclusions of the ‘Pathways to Prevention’ Workshop organized … Continue reading
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Tagged Beth Smith, CR Green, ME Research UK, MERUK, National Institutes of Health, NIH, Pathways to prevention workshop, research
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