Tag Archives: research

Co-production in research into neurological conditions – conference April 14 2016 Cardiff

Organised by the Wales Neurological Alliance, this conference will explore the benefits of a co-productive approach for researchers and participants in the context of the current research environment in Wales. Co-production in research into neurological conditions Thu, Apr 14 at … Continue reading

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CMRC UK CFS/ME Research Collaborative conference report

The UK CFS/ME Research Collaborative conference report for 13-14 October 2015 is now available for download. The report features an overview of 21 presentations and five workshops, plus feedback from conference delegates: CONTENTS 5   Welcome       Prof Stephen Holgate, UK CFS/ME … Continue reading

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Healthwise Wales study

HealthWise Wales is a Welsh Government initiative to involve everyone in Wales in improving the health and wellbeing of the population, by taking part in research. They are asking you to: Help them to work out the most important questions on … Continue reading

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The chokehold behavioural treatments have on ME/CFS

American health blogger Cort Johnson looks at which ME/CFS treatment studies have been published since the start of 2013. He highlights that there has been a lack of drug studies and that most of the these studies were small. Extracts: “With … Continue reading

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250 donations to ‘Solve ME/CFS’ needed by 1 Dec 2015

Giving Tuesday:   Help Solve ME/CFS initiative to meet their challenge and receive $50,000 by making a Giving Tuesday donation. An anonymous donor has put up a $50,000 challenge donation that they will receive, if they get 250 gifts of any amount by Tuesday 1 … Continue reading

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Invitation to take part in a large gene study of ME/CFS

Are you currently diagnosed with ME/CFS (SEID)? Are you interested in your genetic makeup? If so, help the INIM create a one of a kind genetic database for patients with ME/CFS. Participation for this study requires you to have a … Continue reading

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Mendus: patient driven research projects

Mendus is an online research lab where patients can take part in research trials and even suggest topics for study. The aim of Mendus is to bring research within reach of those who need it. patients can unite, discuss, and … Continue reading

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NIH report: advancing ME/CFS research

ME Research UK comment, 17 June 2015: The prestigious US scientific journal Annals of Internal Medicine has just published a position paper – Advancing the research on ME/CFS – which summarizes the conclusions of the ‘Pathways to Prevention’ Workshop organized … Continue reading

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