Tag Archives: Sonya Chowdhury

IAFME sends an ‘agenda for change’ for ME to the WHO

IAFME contacts the WHO about ME The International Alliance for Myalgic Encephalomyelitis (IAFME) has produced a trans-national consensus document covering Myalgic Encephalomyelitis (M.E.). Recognition, research and respect: An agenda for change in M.E. has the support of over 60 clinicians, researchers, … Continue reading

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AfME apologises for its role in the PACE trial & clarifies its change of position

Action for M.E. statement on: The PACE trial and behavioural treatments for M.E. On 29th August 2018 Action for ME published a statement explaining the charity’s role in the PACE trial and apologising for their role in contributing to the … Continue reading

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Carers of children with ME ‘accused of fabrication’

BBC News England, 27 June 2017: Carers of children with ME ‘accused of fabrication’ Chronic Fatigue Syndrome, or ME, affects about 25,000 children in the UK A “significant number” of those caring for children with ME have been accused of … Continue reading

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Guided graded exercise self-help plus specialist medical care (GETSET)

A new research paper on a guided graded exercise programme has received much media coverage, some support and a lot of questions and criticisms. Links to a number of these follow. A summary of the paper’s conclusions can be found in … Continue reading

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UK MEGA project update on funding applications & patient advisory group

MEGA research blog post, by Sonya Chowdhury, 29 March 2017: Our latest funding application and Patient Advisory Group update An update from the Scientific Team and Patient Advisory Group. First the bad news: unfortunately our preliminary application to Wellcome, submitted … Continue reading

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AfME conference videos

Action for ME’s YouTube channel contains videos of their conference held on 18 Nov 2016 Includes: New technologies for M.E. research by Dr Warwick Dunn (University of Birmingham) Our five-year strategy for change by Sonya Chowdhury, CEO of Action for … Continue reading

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Videos of UK CFS/ME Research Collaborative conference 2016

10 videos from UK CFS/ME Research Collaborative conference in September 2016, posted on You Tube by Action for ME, 11 October 2016 Part 1: Welcome by Professor Stephen Holgate Researching a Syndrome: Findings from the UBC Complex Chronic Disease Study … Continue reading

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Clear need for ME research says new report

ME Research UK article, 29 September 2016: ME/CFS research funding: an overview of activity by major institutional funders included on the Dimensions database: A report into the funding of ME/CFS by major institutional funders over the past decade was unveiled … Continue reading

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Close to collapse – Shocking report exposes failings in ME social care

Shocking’ report exposes failings in ME social care, By Raya Al Jadir in Disability News Service, November 13, 2015 A tiny proportion of disabled people with the neurological condition ME are receiving the social care they could be entitled to, according to … Continue reading

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