Tag Archives: Stonebird

With severe ME, everything is cut off from possibility

Posted on 08/08/2019 by wames

by Greg Crowhurst, Stonebird

Posted in News | Tagged , , | Comments Off on With severe ME, everything is cut off from possibility

Severe ME: complex, unpredictable symptoms

Posted on 08/08/2019 by wames

Stonebird – the lived experience of severe ME

Posted in News | Tagged , | Comments Off on Severe ME: complex, unpredictable symptoms

Severe ME day- 8 August 2019

Posted on 08/08/2019 by wames

Severe ME Day – 8th of August 2019 A day to remember everyone who is suffering or who has ever suffered from severe and very severe Myalgic Encephalomyelitis. The 25% Group offers support for severe ME. They have published a … Continue reading →

Posted in News | Tagged , , | Comments Off on Severe ME day- 8 August 2019

August 8th 2018: Understanding & Remembrance Day for Severe ME

Posted on 08/08/2018 by wames

August 8th, 2018: Understanding and Remembrance Day for Severe ME, by Jody Smith in Phoenix Rising blog, 4 Aug 2018 Can you read these words I’ve written on this page? Good. Then you know that I am NOT an example … Continue reading →

Posted in News | Tagged , , , | Comments Off on August 8th 2018: Understanding & Remembrance Day for Severe ME

Severe ME remembrance day, 8 August 2017

Posted on 08/08/2017 by wames

Stonebird: the experience of severe ME At the Stonebird website you can find resources to help you understand the experience of severe ME and how to care for people with it. The Stonebird represents the idea that you don’t have to … Continue reading →

Posted in News | Tagged , | Comments Off on Severe ME remembrance day, 8 August 2017

ME charity responses to NICE consultation

Posted on 07/28/2017 by wames

Here are links to charities’ responses to the 4 questions on NICE’s proposal not to review the Guidelines for CFS/ME   25% ME Group Action for ME Forward ME Hope 4 ME & Fibro Northern Ireland Invest in ME Local … Continue reading →

Posted in News | Tagged , , , , , , , , , , | Comments Off on ME charity responses to NICE consultation

Expectations of recovery in severe ME could impose unreasonable, unrealistic, even fatal demands

Posted on 03/29/2017 by wames

Stonebird blog post, Mar 2017: 25% Group and Stonebird Response to BACME (British Association for ME/CFS), article on care provision for severe ME Response to BACME Working Group on Severe CFS/ME Shared Clinical Practice Document Version 1 When you work … Continue reading →

Posted in News | Tagged , , , , , , , | Comments Off on Expectations of recovery in severe ME could impose unreasonable, unrealistic, even fatal demands

ME classified as a medically unexplained mental health issue by GPs & psychiatrists

Posted on 03/03/2017 by wames

The Joint Commissioning Panel for Mental Health has published: Guidance for commissioners of services for people with medically unexplained symptoms The term Medically Unexplained Symptoms (MUS) refers to persistent bodily complaints for which adequate examination does not reveal sufficient explanatory … Continue reading →

Posted in News | Tagged , , , , , , , , , , , , , , , , , , , , | 2 Comments

2016 – In remembrance

Posted on 08/08/2016 by wames

Yet still I must demand and demand again. Their death demands we ask for integrity and truth. But there is so little of it out there All lost in compromise or outright denial and ignorance. The dead grow, Shockingly. Loved … Continue reading →

Posted in News | Tagged , , | Comments Off on 2016 – In remembrance

Paralysis in ME

Posted on 08/30/2013 by wames

Study abstract Paralysis is a symptom that is rarely highlighted in the literature for ME, yet is found amongst the most severely ill ME population and even some of those not so severely affected. My wife has experienced it for … Continue reading →

Posted in News | Tagged , , , | Comments Off on Paralysis in ME