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PEM: Running out of battery & feeling intensely unwell: a carer’s perspective
PEM: Running out of battery & feeling intensely unwell: a carer’s perspective I guess you’ve probably heard of Myalgic Encephalomyelitis – by its abbreviation ‘ME’. Maybe you’ve got an idea that it’s about being tired all the time. That … Continue reading
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Tagged #LearnFromME, #WorldMEday, carer, DecodeME study, PEM, PESE, Post Exertional Symptom Exacerbation, Post-exertional malaise, symptoms, World ME Day
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Management: Lessons from ME/CFS for long COVID: Heart rate monitoring to manage PESE (PEM)
Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Long COVID: Part 4: Heart Rate Monitoring to Manage Postexertional Symptom Exacerbation, by Todd E Davenport, Staci R Stevens, Jared Stevens, Christopher R Snell, J Mark Van Ness in JOSPT February 23, 2022 [doi.org/10.2519/jospt.blog.20220223] … Continue reading
Research: A comprehensive examination of severely ill ME/CFS patients
A comprehensive examination of severely ill ME/CFS patients, by Chia-Jung Chang, Li-Yuan Hung, Andreas M. Kogelnik, David Kaufman, Raeka S Aiyar, Angela M Chu, Julie Wilhelmy, Peng Li, Linda Tannenbaum, Wenzhong Xiao, Ronald W Davis in Healthcare Vol 9, #10, p … Continue reading
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Tagged Andreas Kogelnik, Angela M Chu, Chia-Jung Chang, David Kaufman, Julie Wilhelmy, Li-Yuan Hung, Linda Tannenbaum, long Covid, Peng Li, Prof Ronald W Davis, Quality of life, Raeka S Aiyar, symptoms, very severe ME/CFS, viral infections, Wenzhong Xiao
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Warning signals of Post-Exertional Malaise in ME/CFS
Warning Signals of Post-Exertional Malaise in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: A retrospective analysis of 197 patients, by Alaa Ghali, Carole Lacout, Maria Ghali, Aline Gury, Estelle Delattre, Christian Lavigne and Geoffrey Urbanski in J. Clin. Med. 2021, 10(11), 2517; … Continue reading
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Tagged Alaa Ghali, Aline Gury, Carole Lacout, Christian Lavigne, Estelle Delattre, Geoffrey Urbanski, Maria Ghali, PEM, Post-exertional malaise, prevention, symptoms, warning signal
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COVID-19 symptoms over time: comparing long-haulers to ME/CFS
COVID-19 symptoms over time: comparing long-haulers to ME/CFS, by Leonard A Jason, Mohammed F Islam, Karl Conroy, Joseph Cotler, Chelsea Torres, Mady Johnson in Fatigue: Biomedicine, Health & Behavior 05 May 2021 [doi.org/10.1080/21641846.2021.1922140] Research Abstract: Introduction: Our objective was … Continue reading
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Tagged Chelsea Torres, Cort Johnson, Joseph Cotler, Karl Conroy, long Covid, long haulers, Mady Johnso, Mohammed F Islam, PEM, Post-exertional malaise, Prof Leonard Jason, symptoms
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The Chronic Illness Survey Adventure – an international study of symptoms
The Chronic Illness Survey Adventure What is it? An international survey-based study to probe more deeply into ME/CFS, long COVID, POTS, hEDS and MCAS – ‘Symptom Cluster Characterization in Complex Chronic Disease’. Who is behind it? It is a partnership … Continue reading
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Tagged MEAction, patient survey, Prof Mady Hornig, research, symptoms, The Chronic Illness Survey Adventure
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Long COVID & ME/CFS – a systemic review & comparison of clinical presentation & symptomatology
Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) – a systemic review and comparison of clinical presentation and symptomatology, by Timothy L Wong, Danielle J Weitzer in Medicina 2021, 57(5), 418; [doi.org/10.3390/medicina57050418] Review abstract: Background and Objectives: Long COVID … Continue reading
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Tagged Danielle J Weitzer, long Covid, symptoms, Timothy L Wong
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ME/CFS symptoms – videos of patients’ experiences
Dialogues for ME/CFS videos – Symptoms The latest videos in the ‘Dialogues for a neglected illness’ series gives patients’ accounts of a variety of key symptoms experienced in ME/CFS. Reduced Function – 20 mins How does the disease … Continue reading
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Tagged Dialogues ME-CFS, patient experiences, symptoms, videos
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NICE draft ME/CFS guideline says ME/CFS is chronic, affecting multiple body systems
NICE says ME/CFS is a complex, chronic medical condition affecting multiple body systems The draft of the revised NICE guideline has been published on November 10th 2020. It will be open for consultation until December 22nd. As a stakeholder … Continue reading
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Tagged case definitions, cognitive dysfunction, criteria, fatigability, National Institute for Health and Care Excellence, NICE guideline ME/CFS, PEM, Post-exertional malaise, sleep dysfunction, symptoms, unrefreshing sleep
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