Tag Archives: Tymes Trust

Online talk: ME/CFS and long Covid in children & young people with Dr Nigel Speight, 24 Sep 2020

Posted on 09/18/2020 by wames

Sheffield ME & FM Group: Online talk: ME/cfs in children and young people – Dr Nigel Speight   This talk is especially relevant to families supporting young people and those not getting the support they need from schools and services. It will … Continue reading →

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ME charity responses to NICE consultation

Posted on 07/28/2017 by wames

Here are links to charities’ responses to the 4 questions on NICE’s proposal not to review the Guidelines for CFS/ME   25% ME Group Action for ME Forward ME Hope 4 ME & Fibro Northern Ireland Invest in ME Local … Continue reading →

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TYMES trust publishes their concerns about MEGA study

Posted on 11/16/2016 by wames

MEGA statement from Tymes Trust: a study too far , 13 November 2016 Let us establish at the start, that Tymes Trust does not endorse or support MEGA. Fatigue is not ME, and ME is not fatigue. What disease does … Continue reading →

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MAGENTA trial – PACE for children

Posted on 02/19/2016 by wames

Dr Esther Crawley’s study of activity management and Graded Exercise Therapy in children started in September 2015 and is due to end in August 2016 Tymes Trust comments when calling for an investigation into the PACE trial data: “We are frequently … Continue reading →

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ME parents’ fury at child abuse claims

Posted on 06/22/2015 by wames

Article in Sunday Express by Caroline Wheeler,  June 21, 2015: Hundreds of parents whose children suffer from a crippling illness that leaves them permanently exhausted have been falsely accused of child abuse. Charities have helped hundreds of families of children with … Continue reading →

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NICE corrects classification of CFS/ME

Posted on 10/19/2014 by wames

From Tymes Trust: Tyme Trust discovered over the parliamentary recess that NICE had listed the CFS/ME Guideline under mental health. We immediately alerted Patron the Countess of Mar, of whose Forward-ME  group we are a member. NICE’s listing could already have … Continue reading →

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Child abuse allegations in ME unfounded

Posted on 07/28/2014 by wames

Abstract There is no cure for ME (Myalgic Encephalomyelitis). In its absence, management regimes are prescribed, typically based on cognitive behavioural therapy (CBT) and graded exercise therapy (GET). In the case of children this may involve the application of Child … Continue reading →

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Good practice guide to education for children with ME

Posted on 06/08/2014 by wames

Tymes Trust’s new document to celebrate their 1st June anniversary is for GPs, schools and families. It includes key information from government statutory guidelines on education for sick children in England, and helpful quotes from NICE. GP Dr Nigel Hunt writes: … Continue reading →

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Dr Dowsett on ME relapses

Posted on 10/24/2012 by wames

To commemorate the life of Dr Betty Dowsett the Young ME Sufferers Trust has posted online an article by her about ME relapses. There’s No Smoke Without Fire! Some comments on the tendency to replase in ME She lists the … Continue reading →

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