Let’s talk ME!
The WAMES campaign to encourage people and professionals to ‘Let’s talk ME’ aims to increase understanding about our struggle to live with, and find help for our misunderstood health condition.
Tell your story – we want to hear stories from patients and carers of good and bad experiences of accessing care from to help us work with health and social care professionals.
Following the publication of the ME/CFS/FM Task & Finish Group Report (which WAMES was involved with, Health Boards have been told to involve patients and carers in the co-production of services. WAMES will be working to ensure that patients and carers are invited to get involved, tell their stories and help to shape services.
WAMES survey of services 2012
We surveyed your experiences of services, good and bad. Find out more.
ME Awareness Week 2012: 6 – 12 May
This year WAMES will be joining Facebook and Twitter to help raise the profile of ME in Wales. Need help planning or advertising your awareness raising ideas? Contact Sylvia.
ME & CFS information for all
10 years of campaigning for better services and talking to people with ME, carers and professionals has shown us that accurate information about ME is not reaching those who need it. During ME Awareness week WAMES launched a campaign to provide better information in Welsh and English for all who need it, beginning with our new website. We are using research results, clinicians’ experience and patient and carer stories to produce information sheets on a wide range of topics. These will become available on the website throughout the year, funded by the Big Lottery Fund. We invite people to contact us to let us know how we can meet your information needs.
Wear blue for ME
WAMES invites people with ME, their friends and family to raise awareness of ME by wearing blue ribbons or items of blue clothing during ME Awareness week.
Don’t forget ME!
WAMES joined with groups throughout the UK to highlight the difficulties people experience in getting a diagnosis and the harm that delay can cause.