The Open Medicine Foundation Pediatric ME/CFS web page contains information about ME for parents, doctors and educators from a US perspective, but much is helpful in the UK:
The presentation and course of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is often different in children and adolescence than adults. Dr. David S. Bell, a member of our ME/CFS Scientific Advisory Board and pioneer in the field of Pediatric ME/CFS, provided us an in-depth description of pediatric ME/CFS.
A ME/CFS Pediatric Primer (Frontiers in Pediatrics, 2017) provides a medical understanding for pediatricians, family practice doctors, and all healthcare providers involved in children/student’s care. We encourage parents to share this link with your child’s physician and healthcare team.
The impact of ME/CFS on a young person can be very significant. To help young people and their families cope with educational, social, and developmental challenges, in addition to medical problems, we present three outstanding resources developed by Dr. Faith Newton of Delaware State University. We encourage parents to print these documents and share them with your child’s school administration.
ME/CFS Fact Sheet: Educational Implications
ME/CFS Fact Sheet: Classroom Accommodations
ME/CFS School Fact Sheet: Resource for Parents, Educators & School Nurses