Author Archives: wames

Share old skills or learn new ones   Why volunteer ‘behind the scenes’? Much of the work of WAMES involves ‘speaking out’, advocating and supplying information about ME. That is not possible without people working in support roles like secretary, … Continue reading →

Short-term opportunities in WAMES   Can you spare a few hours or a few days, in ways and at times that are suitable for you?   From time to time WAMES needs short-term help or expertise for one-off or occasional … Continue reading →

A time for reflection – 2025 AGM   Every year we are required to hold an AGM and it always casts a bit of a shadow. It causes so much extra admin as we gather information for reports. But every … Continue reading →

Caring About Equality   During Carers Week 2025, 9-15 June, WAMES is joining the call for a fairer society for all our unpaid carers. The Caring about Equality report  highlights the inequalities facing unpaid carers in the UK today and … Continue reading →

No Volunteers – no WAMES! WAMES is entirely volunteer run. But what does that mean? What do volunteers do for WAMES? For the past 25 years volunteers have enabled WAMES to speak out on behalf of people affected by ME. … Continue reading →

Disabled People’s Rights – have your say!   The Welsh Government has launched a consultation on its Draft Disabled People’s Rights plan, setting out “a positive ambition for advancing the rights and opportunities of all disabled people across Wales over … Continue reading →

Tell ME Voices Wales what matters to you The ME Voices Wales project was launched in May 2025 by WAMES and FTWW with 2 virtual events. After hearing about past advocacy efforts in Wales, participants were asked to select the … Continue reading →

WAMES Annual General Meeting 2025   WAMES will be holding our annual business meeting via Teams on Saturday 7 June at 11.30 am. This is the opportunity for members to elect officers, oversee the finances and identify priorities for the … Continue reading →

Marjorie Crispin – fondly remembered   We were very sorry to hear of the death of Marjorie Crispin on 9th May 2025. We remember with gratitude the many years when she and her husband John organised and guided the Mid … Continue reading →

Clinical Care Guide: Managing ME/CFS, Long COVID & Infection-Associated Chronic Conditions (IACCs)   This clinical care guide has been developed by the OMF-supported Medical Education Resource Center (MERC) at Bateman Horne Center, Utah, USA. It aims to offer “a practical … Continue reading →