Author Archives: wames

Severe ME Day – a day to remember   Severe ME Day was established by the 25% Group on August 8th was chosen in remembrance of Sophia Mirza, a severe ME patient who died of the disease. Today the group uses … Continue reading →

Supporting people with severe & very severe ME   WAMES and the World ME Alliance are offering a key resource for Severe ME day on 8 August 2025 Supporting people with severe & very severe ME: a resource guide for … Continue reading →

DNA study reveals ME/CFS Neuro-immune causes The DecodeME team announce that the initial analysis of 15,579 DNA samples is complete, and they have important news to share. Main findings: Your genes contribute to your chances of developing ME/CFS. People with an ME/CFS … Continue reading →

Llais Cymru invites us to tell them about the health & social care we want   Llais Cymru is a Welsh Government body with the remit to promote patients’ interests to NHS Wales and social care in Wales. “We’re here … Continue reading →

Delivery plan for ME/CFS in England   After a long wait – over 3 years – the strategy for ME/CFS in England has been published by the DHSC in consultation with a wide range of stakeholders. The Parliamentary Under-Secretary of … Continue reading →

Ask your MS to support a debate in the Senedd   Welsh Senedd Debate on Severe and Very Severe ME Adam Price, Member of the Welsh Senedd (MS), has sponsored a motion for debate in the Senedd about provision for … Continue reading →

Will we climb the big hill today?   A new book by Mair Squire and Cara Smart is designed to help children understand more about the adults in their lives who are living with chronic illness. It was originally inspired … Continue reading →

Share old skills or learn new ones   Why volunteer ‘behind the scenes’? Much of the work of WAMES involves ‘speaking out’, advocating and supplying information about ME. That is not possible without people working in support roles like secretary, … Continue reading →

Short-term opportunities in WAMES   Can you spare a few hours or a few days, in ways and at times that are suitable for you?   From time to time WAMES needs short-term help or expertise for one-off or occasional … Continue reading →

A time for reflection – 2025 AGM   Every year we are required to hold an AGM and it always casts a bit of a shadow. It causes so much extra admin as we gather information for reports. But every … Continue reading →