Author Archives: wames

ME Voices Wales – have your say!   How can people with ME in Wales have a louder voice? Who do we want to listen to us? What changes do we want to see take place? How can we find … Continue reading →

Carmarthenshire ME Support Group   The group invites people with ME, family & carers to join them in Coleshill Social Centre, Llanelli for their bi-monthly meetings. in the Coleshill Social Centre, Coleshill Terrace, Llanelli SA15 3BT.  The entrance is  round the … Continue reading →

ME/CFS – an urgent need for awareness, services, research funding and support (Women’s Health Plan)   The first Women’s Health Plan for Wales was launched in December 2024 and illustrates a 10-year vision to improve healthcare services for women, uncluding … Continue reading →

Merry Christmas… …and a happy, healthy and prosperous new year to one and all, from everyone at WAMES. WAMES volunteers, both people with ME and carers, will be taking some much needed time off over the festive period so we … Continue reading →

Question about ME/CFS in the Senedd   On the 22nd October Adam Price MS tabled a written question to the Health Secretary: What plans does the Welsh Government or NHS Wales have to establish an all-Wales pathway for patients with … Continue reading →

Unpaid Carers need care and support   Sylvia Penny, the Youth & Care Officer & Helpline coordinator for WAMES, is also an unpaid carer for her 2 adult children. One has severe ME and one has autism. She spoke to … Continue reading →

Cwm Taf Primary Fatigue Service   In Oct 2023 Cwm Taf UHB began to launch a revised Adferiad service. This followed the Welsh Government funding given to Health Boards to extend their long COVID services to also cater for people … Continue reading →

An introduction to myalgic encelphalomyelitis or chronic fatigue syndrome (ME/CFS): e-learning module   Following the English Delivery Plan Consultation in 2023 a commitment was made to produce Continuing Professional Development courses on ME/CFS. Part 1 has been published and covers: … Continue reading →

Patient experiences of remote consulting with CFS/ME & FM   English researchers set out to find out how the increasing use of remote consultations in general practice affected people with CFS/ME and Fibromyalgia. Whilst face-to-face consulting was seen as a … Continue reading →

National campaign aims for step change in disability justice   We all want a decent quality of life for ourselves and those we care about. Yet two million Disabled people are trapped in deep poverty, unable to afford to eat … Continue reading →