Author Archives: wames

ME Voices Wales events May – book the date!

ME Voices Wales – book the date!   Join us online! The first online event to explore ways that people affected by ME in can have a louder voice in Wales is scheduled for Tuesday 13 May at 11 am. … Continue reading

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Easter 2025 – Helpline hours

The WAMES helpline is run by volunteers and will be closed over the long Easter weekend.  helpline@wames.org.uk  0290 2051 5061   The helpline will be closed from 5pm Thursday 17 April – 10am Tuesday 22 April 2025. Normal hours are … Continue reading

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Senedd debate on severe ME – add your voice!

Severe & very severe ME in Wales   Rob Messenger’s son, Cerith, has very severe ME. His local Senedd Member has offered to bid for a debate in the Senedd to raise concerns with the Health Minister about the lack … Continue reading

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ME Voices Wales – have your say!

ME Voices Wales – have your say!   How can people with ME in Wales have a louder voice? Who do we want to listen to us? What changes do we want to see take place? How can we find … Continue reading

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Carmarthenshire ME Support Group 2025

Carmarthenshire ME Support Group   The group invites people with ME, family & carers to join them in Coleshill Social Centre, Llanelli for their bi-monthly meetings. in the Coleshill Social Centre, Coleshill Terrace, Llanelli SA15 3BT.  The entrance is  round the … Continue reading

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ME/CFS is a priority in the Women’s Health Plan for Wales

ME/CFS – an urgent need for awareness, services, research funding and support (Women’s Health Plan)   The first Women’s Health Plan for Wales was launched in December 2024 and illustrates a 10-year vision to improve healthcare services for women, uncluding … Continue reading

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Christmas greetings & holiday hours 2024

Merry Christmas… …and a happy, healthy and prosperous new year to one and all, from everyone at WAMES. WAMES volunteers, both people with ME and carers, will be taking some much needed time off over the festive period so we … Continue reading

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Senedd Q&A: ME/CFS pathway & training

Question about ME/CFS in the Senedd   On the 22nd October Adam Price MS tabled a written question to the Health Secretary: What plans does the Welsh Government or NHS Wales have to establish an all-Wales pathway for patients with … Continue reading

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Unpaid carers – Sylvia highlights need for support

Unpaid Carers need care and support   Sylvia Penny, the Youth & Care Officer & Helpline coordinator for WAMES, is also an unpaid carer for her 2 adult children. One has severe ME and one has autism. She spoke to … Continue reading

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Cwm Taf UHB Primary Fatigue Service

Cwm Taf Primary Fatigue Service   In Oct 2023 Cwm Taf UHB began to launch a revised Adferiad service. This followed the Welsh Government funding given to Health Boards to extend their long COVID services to also cater for people … Continue reading

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