Cardiff University ME/CFS Family Impact Study

Dr Nina Muirhead writes:

We are excited to announce a new international research study looking at the impact of ME/CFS on the quality of life of both patients and their family members.

This is a short and simple online survey designed to be accessible to all adults 18+, including severely affected patients.

There are two questionnaires in the survey, one for the patient and one for a life partner or family member. If you cannot be together to complete it, you can save and return. People with ME/CFS piloting the survey found each questionnaire only took about 5 minutes to complete.

Take part: https://redcap.link/MECFSFamilyImpactStudy

Please share widely to encourage others to participate. The greater the reach of this survey the more we can improve international understanding of how ME/CFS impacts patients and their family members.

Deadline is 31 March 2021 – looking for 1,000 family responses

If you have started the study but lost the link to return please e-mail MEFROM16study@cardiff.ac.uk to be given your unique access code (please note this may take a few days).

Thank you and best wishes,

Dr Nina Muirhead and the Study Team at Cardiff University, United Kingdom.