Category Archives: News

Christmas greetings & holiday hours 2024

Merry Christmas… …and a happy, healthy and prosperous new year to one and all, from everyone at WAMES. WAMES volunteers, both people with ME and carers, will be taking some much needed time off over the festive period so we … Continue reading

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Senedd Q&A: ME/CFS pathway & training

Question about ME/CFS in the Senedd   On the 22nd October Adam Price MS tabled a written question to the Health Secretary: What plans does the Welsh Government or NHS Wales have to establish an all-Wales pathway for patients with … Continue reading

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Unpaid carers – Sylvia highlights need for support

Unpaid Carers need care and support   Sylvia Penny, the Youth & Care Officer & Helpline coordinator for WAMES, is also an unpaid carer for her 2 adult children. One has severe ME and one has autism. She spoke to … Continue reading

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Cwm Taf UHB Primary Fatigue Service

Cwm Taf Primary Fatigue Service   In Oct 2023 Cwm Taf UHB began to launch a revised Adferiad service. This followed the Welsh Government funding given to Health Boards to extend their long COVID services to also cater for people … Continue reading

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ME/CFS e-learning module from NHS England

An introduction to myalgic encelphalomyelitis or chronic fatigue syndrome (ME/CFS): e-learning module   Following the English Delivery Plan Consultation in 2023 a commitment was made to produce Continuing Professional Development courses on ME/CFS. Part 1 has been published and covers: … Continue reading

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Research: Remote consultations pros & cons

Patient experiences of remote consulting with CFS/ME & FM   English researchers set out to find out how the increasing use of remote consultations in general practice affected people with CFS/ME and Fibromyalgia. Whilst face-to-face consulting was seen as a … Continue reading

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Campaign for Disability Justice

National campaign aims for step change in disability justice   We all want a decent quality of life for ourselves and those we care about. Yet two million Disabled people are trapped in deep poverty, unable to afford to eat … Continue reading

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WAMES 2024 BH helpline hours

WAMES 2024 Bank Holiday helpline hours   The WAMES helpline is run by volunteers and will be closed for the Bank Holiday long weekend. helpline@wames.org.uk  0290 2051 5061 closes 5pm 23rd August reopens Tues 27th August     For emotional … Continue reading

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Severe ME artists project 2024

Severe ME Artists Project   140+ people contributed to the project organised by #MEAction. This 17 minute long video is a compilation of photos, drawings, writing and videos submitted from aound the world. #SevereME day View the full gallery

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WAMES calls for safe hospital care for severe ME in Wales

#SevereMEday 2024 WAMES calls for safe hospital care for severe ME in Wales   On #SevereMEday,  8 August 2024, WAMES is asking the NHS in Wales to ensure they can treat patients with ME, and particularly those with severe ME, … Continue reading

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