Category Archives: News

Carers ‘Know your rights, use your rights.’  On Carers Rights day all unpaid carers are encouraged to find out what your rights are, so you can feel confident to ask for what you need, as well as to challenge,  when … Continue reading →

Symptom Management Service in Aneurin Bevan UHB   The Aneurin Bevan University Health Board (ABUHB) provides services to Torfaen, Caerphilly, Newport, Blaenau Gwent and Monmouthshire. Since April 2025 they have been offering a full-blown Symptom Management service for people with … Continue reading →

Services for ME/CFS in North Wales   Betsi Caldwaladr University Health Board has launched an expanded service for people with ME/CFS: ‘The new Living Well Service provides access to a wide range of health professionals and support, whilst also maintaining … Continue reading →

ME Voices Wales invites you to the ME/CFS Self-management event   Do you have questions or thoughts about ME/CFS self management? Why is it necessary? What is it? Can anyone help? Join us as we share information and ideas about … Continue reading →

Toby writes about ‘feeling different’   “Write what you know”, said author Mark Twain. Toby Hall from Powys has done just that with his children’s book, Walter the farting whale. The idea for my book came from a story I … Continue reading →

Senedd Debate postponed!   Welsh Senedd Debate was due to take place about Severe and Very Severe ME on 15th October. Adam Price MS was due to lead the Members Debate on ME  in the Welsh Senedd, but on Sunday … Continue reading →

Welsh Senedd Debate on Severe and Very Severe ME   Adam Price, Member of the Welsh Senedd (MS), has been sucessful in getting a debate in the Senedd about provision for Severe and Very Severe ME.  Please ask your MSs … Continue reading →

Severe ME Day – a day to remember   Severe ME Day was established by the 25% Group on August 8th was chosen in remembrance of Sophia Mirza, a severe ME patient who died of the disease. Today the group uses … Continue reading →

Supporting people with severe & very severe ME   WAMES and the World ME Alliance are offering a key resource for Severe ME day on 8 August 2025 Supporting people with severe & very severe ME: a resource guide for … Continue reading →

DNA study reveals ME/CFS Neuro-immune causes The DecodeME team announce that the initial analysis of 15,579 DNA samples is complete, and they have important news to share. Main findings: Your genes contribute to your chances of developing ME/CFS. People with an ME/CFS … Continue reading →