Category Archives: News
Christmas greetings & holiday hours 2024
Merry Christmas… …and a happy, healthy and prosperous new year to one and all, from everyone at WAMES. WAMES volunteers, both people with ME and carers, will be taking some much needed time off over the festive period so we … Continue reading
Senedd Q&A: ME/CFS pathway & training
Question about ME/CFS in the Senedd On the 22nd October Adam Price MS tabled a written question to the Health Secretary: What plans does the Welsh Government or NHS Wales have to establish an all-Wales pathway for patients with … Continue reading
Unpaid carers – Sylvia highlights need for support
Unpaid Carers need care and support Sylvia Penny, the Youth & Care Officer & Helpline coordinator for WAMES, is also an unpaid carer for her 2 adult children. One has severe ME and one has autism. She spoke to … Continue reading
Cwm Taf UHB Primary Fatigue Service
Cwm Taf Primary Fatigue Service In Oct 2023 Cwm Taf UHB began to launch a revised Adferiad service. This followed the Welsh Government funding given to Health Boards to extend their long COVID services to also cater for people … Continue reading
ME/CFS e-learning module from NHS England
An introduction to myalgic encelphalomyelitis or chronic fatigue syndrome (ME/CFS): e-learning module Following the English Delivery Plan Consultation in 2023 a commitment was made to produce Continuing Professional Development courses on ME/CFS. Part 1 has been published and covers: … Continue reading
Research: Remote consultations pros & cons
Patient experiences of remote consulting with CFS/ME & FM English researchers set out to find out how the increasing use of remote consultations in general practice affected people with CFS/ME and Fibromyalgia. Whilst face-to-face consulting was seen as a … Continue reading
Campaign for Disability Justice
National campaign aims for step change in disability justice We all want a decent quality of life for ourselves and those we care about. Yet two million Disabled people are trapped in deep poverty, unable to afford to eat … Continue reading
WAMES 2024 BH helpline hours
WAMES 2024 Bank Holiday helpline hours The WAMES helpline is run by volunteers and will be closed for the Bank Holiday long weekend. helpline@wames.org.uk 0290 2051 5061 closes 5pm 23rd August reopens Tues 27th August For emotional … Continue reading
Severe ME artists project 2024
Severe ME Artists Project 140+ people contributed to the project organised by #MEAction. This 17 minute long video is a compilation of photos, drawings, writing and videos submitted from aound the world. #SevereME day View the full gallery
WAMES calls for safe hospital care for severe ME in Wales
#SevereMEday 2024 WAMES calls for safe hospital care for severe ME in Wales On #SevereMEday, 8 August 2024, WAMES is asking the NHS in Wales to ensure they can treat patients with ME, and particularly those with severe ME, … Continue reading