The UK CFS/ME Research Collaborative conference report for 13-14 October 2015 is now available for download. The report features an overview of 21 presentations and five workshops, plus feedback from conference delegates:
CONTENTS
5 Welcome Prof Stephen Holgate, UK CFS/ME Research Collaborative Chair
Plenary Session 1: Neuropathology
8 Keynote Presentation: Stanford ME/CFS Collaboration: Collaboration, Innovation
& Discovery Prof José Montoya, Stanford University
10 Neural correlates of fatigue: a voxel-based morphometric MRI study of CFS/ME – Whitney General, Bristol University
11 Brain white matter hyperintensities are not a common finding in CFS – Andreas Finkelmeyer, Newcastle University
Workshops
12 Patient reported outcome measures – Dr Kirstie Haywood, Warwick University
13 Fatigue matters – Prof Julia Newton, Newcastle University and Prof Chris Macdonald, Arthritis UK
13 Autonomic Nervous System – Dr James Frith, Newcastle University
14 Neuropathology – Prof Richard Reynolds, Southampton University
14 Clinical Trials – Dr Esther Crawley, Bristol University
Plenary Session 2: Widening the Net
15 Health & Social Policy Research and M.E. – Prof Liz Perkins, Liverpool University
16 Imaging the Neural Correlates of Post-Exertional Malaise in CFS/ME – Dr Mark Edwards, St George’s University of London
18 The epidemiology of CFS/ME in adolescence – Dr Esther Crawley, Bristol University
19 Identifying the biological fingerprints of fatigue – Prof Fai Ng, Newcastle University
20 Persistent fatigue induced by Interferon-alpha: a new immunological model for CFS – Alice Russell for Prof Carmine Pariante, King’s College London
21 Understanding the pathogenesis of autonomic dysfunction in CFS and its relationship with cognitive impairment – Prof Julia Newton, Newcastle University
Plenary Session 3: Autonomic System
22 Autonomic Nervous System in CFS/ME – Prof Jo Nijs, Vrije Universiteit Brussel
23 Cardiac iodine-123-meta-iodo-benzylguanidine uptake in CFS associates with
autonomic function and fatigue severity – Prof Julia Newton on behalf of George Petriades, Newcastle University
24 Reduced cardiac volumes in CFS associated with plasma volume but not length of
disease – Prof Julia Newton, Newcastle University
Plenary Session 4: Clinical Trials
25 Rituximab Trial – Dr Øystein Fluge, University of Bergen
26 Post viral CFS/ME patients have normal levels of B cell populations – Dr Caroline Strachan, Leeds Partnerships NHS Foundation Trust
27 Cohort Profile: The Collaborative on Fatigue Following Infection (COFFI) – Dr Simon Collin, Bristol University
Plenary Session 5: Sleep
28 Sleep and CFS/ME – Prof Jim Horne, Loughborough University
29 Assignable causes for fatigue in Primary Sjögren’s syndrome: data from the UK
primary Sjögren’s syndrome registry – Rebecca Lambson, Newcastle University
30 From healthy to being ill with post-infectious fatigue syndrome: a qualitative
content analysis of illness trajectory – Eva Stormorken, Oslo University Anne Faulkner Memorial Lecture
31 The bigger picture: big data, genomics, epigenetics and metabolomics – Prof George Davey Smith, Bristol University
37 Closing Remarks, Reflections & Where Next for the CMRC
Prof Stephen Holgate, UK CFS/ME Research Collaborative Chair – 38 Poster presentations
39 Conference feedback
The UK ME/CFS Research Collaborative (CMRC) held a board meeting on 15th January 2016 to discuss relevant issues, such as plans for an autumn 2016 conference and research matters: draft Minutes