DecodeME recruitment update + April webinar


An update from the The DecodeME ME/CFS Study Team, 25 March 2021:

We’d like to update you on the recruitment start date for the DecodeME study, and tell you about an upcoming Q&A webinar on the steps involved in joining.

As you might expect, we’ve faced some delays due to the pandemic. We’ve also adjusted our pace on aspects of our preparation, to make sure that people with ME/CFS could fully contribute to this phase of the study. Their lived experience and expertise is at the heart of DecodeME and we’ve made many changes at their suggestion.

As a result, we’ll now launch recruitment by the end of September 2021 and not May, as we’d originally hoped.

This slight delay will help to ensure that the study runs smoothly once recruitment is under way. In the meantime, we’ve been busy organising ethical approval, creating a robust recruitment plan based on thousands of suggestions from people in the ME/CFS community, and developing and integrating the questionnaire.

We’re delighted that we already have over 23,600 people in the UK who want to take part in DecodeME when we launch. This is remarkable. Thank you.

The DecodeME DNA study aims to help us understand the disease and ultimately find treatments. Sign up to get involved.

Webinar 15 April – find out more!

We’d also like to invite you to our latest Management Group Q&A webinar, which focuses specifically on our recruitment process, so that people wanting to take part in DecodeME know what to expect. The webinar will run from 6:00–6:45pm on Thursday 15 April on Facebook Live. Please visit our Survey Monkey form to indicate that you’ll be attending the webinar and to put forward any questions you have about the recruitment process.

If you missed our last Management Group webinar, you can still view it. Meanwhile, if you have any further questions about the project, please access the regularly updated  FAQs on our website.

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